Dear Louise:
Since I am a neurologist, I am not sure if you want my opinion. Since you do not "want to be sent to a neurologist". As far as sending you anywhere, usually the internet is not a place to get a diagnosis as the story is only partial and the exam non-existent, so getting a patient to someone who can do those things is the best for the patient.
What were the findings concerning slow saccades? You may have a slow pursuit problem or abnormal saccades (slow vs fast fixation). Were your visual evoked potentials normal? You have normal binocular vision (see in 3D)? Anyway, in ocular migraine, the visual phenomonea is episodic and not continual. Migraines are usually no more than 2-4 per month with the in-between time normal. Since you have this problem continuously, the symptoms are not migraine. Since the EEG is normal when you are visualizing stripes and using onw or two eyes, the problem is not seizure activity activated by visual stimuli. So, I really cannot tell you much that you don't already know. Sorry that I'm not much help.
Sincerely,
CCF Neuro MD
CCF Neuro MD
I gotta say...I have been trying to post to this site for over 8 months now to no avail...and then this gets posted - someone who starts out immediately asserting they don't want the advice of a neurologist...well, this is the neruology forum. These doctors are wonderful to take their time out - you don't know how luck you are to have even been able to post!!!!! They accept just 2 questions per day!