43 y/o f in menopa, college prof, who last Nov. began w/ weird vision. Optom. on 3 diff. visits said r. eye vision changed slightly, but nothing to worry about. After changing glasses pres. 3 times w/ no change. Went to 2 diff. ophths. who both gave diff. reasons: astigmatism & getting older. I have most trouble at computers or w/
fluorFluor-a-day
Fluor-op.lights, as both seem to flicker. Patterns in carpets/shirts flicker/pulsate/flare. Seer-sucker jacket as one dr. wore drive me crazy w/ flaring. Neuro-ophth. over 7 diff. visits tested for
SjogrensSjogren syndrome, Lupus, Sclerdrma, MS, Lyme,& many others. 2 Neurols have done MRI w & w/o contrast of brain, an ENG, VEP,
EEG, VNG, CT sinuses, Bari swallow:
normalNormal saline flush. VNG showed some nystagmus on r.side- positional. Problem is constant. Had LP looking for MS and others-normal. Vision makes me feel drunk at times, as if lines wave, kind of like looking at a mirage or
heatBabies and heat rashes
Heat emergencies
Heat rash
Infant heat rash
Tenosynovitis from grill. May be related to both eyes not focusing at same time/speed. Very hard to focus in on something, like canned goods on grocery shelf. See OK, but processing time or ability is off. Is this an eye/ear/brain/cns prob? Only meds:
synthroid & antioxid. vitamn. 2 24-hr. urine tests showed arsenic, one 95/one 15. All blood tests fine, incl. CBC,SSA&B,ANA, AntiANA,Igg, Comp3&4. 3 wks ago 3 diff. times one day, got so dizzy for 30-45 sec. almost feel over. 2X in class, 1X driving on I-20. Barely stayed in lane. Pulled over and it passed.Has not happd. since. Neuro. apt. tomor. Any other tests to suggest or ideas on what this is? Can live w/if had to & knew I won't die from it but-frustrating!
I am a 42 y/o female who is beginning to experience (for the 1st time ever!) irregular menses and I wonder if any of my symptoms are hormone related?
I still have some visual problems with driving and in the grocery store. I have a similar complaint with the eye/brain connection when looking at items. It is hard to describe but I feel like I have to concentrate when choosing an item. I have the most success when I go with a short list of items that I can find quickly and easily. I have been the anxiety/panic route based on a line of thinking by a neurologist that I no longer see and I know myself and I know that I am NOT anxious or nervous about shopping. I just feel strange - visually and this is so hard to get anyone to understand. I also feel the same way when looking at sharp color contrasts (small checks - like the seersucker jacket you mentioned) Patterned carpets, fluorescent lights, etc...
The doc who conducted the testing at the balance center seemed to understand my problem. She asked if I am uncomfortable on a stationary bike or treadmill. My answer was YES! She explained that my eye/brain connection is confused because when riding a bike or walking my eyes expect to see movement to the left and right and this does not happen when on a machine. I found this fascinating. She went on to say that I am probably more comfortable walking in a wide open space (outside) on a cloudy day or at dusk than on a bright, sunny day (Yes, again). And she explained that this is why the fluorescent lights bother me in a grocery store, mall, etc. - Its all about the color contrast. The Cawthorne-Cooksey exercises made me dizzy in the beginning but I am not swaying during the day like I was in the summer.
A visit to a chiropractor was suggested to me by a nurse practitioner. Any experience with this?
Meds: I take 2-4 Motrin a day and occasionally a muscle relaxant at bedtime.
Let me know how you are doing!
in Charlottesville. The exercises are the Cawthorne-Cooksey exercises and can be found on various sites on the internet.
I have noticed a variation to these exercises but take a look
at dizziness-and-balance.com. Look under Treatment of Vertigo, then vestibular rehabilitation. Vestibular.org also has info.
I have yet to see an MD who comments on these exercises - Neurologist, my Primary Care Physician and the ENT doctor who ordered the testing. The woman who conducted the tests has a PhD in audiology and has been involved in the vestibular system for a number of years. She showed me a model of the semi-circular canals and spent a great deal of time explaining their function, how fragile and tiny they are and how easy it is for something to be amiss. She also stated an opinion that the vestibular system is grossly overlooked in medical school.
I would be happy to keep in touch regarding my progress!
I am seeing my dentist today to check on my mouthpiece which is for clenching. My previous dentist saw no evidence of grinding and did not comment on clenching. My new dentist spent a great deal of time with me and custom made a device to prevent me from clenching. The past 5 days I am experiencing a very uncomfortable "locked-up" feeling in my rt. jaw area, temple, and neck area. Motrin takes it down a notch but I am tired of taking it everyday!!
I don't know if all my symptoms are related or if I have a couple of different issues. Since the "big, bad things" have been ruled out I guess I will continue to focus on improving my comfort level.
Pamela: what's your vision like in the grocery store? I wonder if mine could have been triggered by stress, too, but it's been a year next month and it hasn't gotten better. Besides, I've heard of stress doing a lot of things, but vision? Weird. I know what you mean about the halos and fuzzy stuff around lights. I sometimes feel like my eyes aren't working in unison, like maybe my right eye is moving at a slower rate/kind of sluggish. My right eye seems to take a little longer to adjust to changing distances, too. But, like jmva, I'm going to look into the exercises and into balance testing. I find that looking from side to forward and from down to up can throw my balance off visually, if you know what I mean. It's kind of like I've had a drink, but the only thing affected is my vision-it's wobbly. Drs. seem perplexed, like they've never heard anything like it. And, I've been to a neuro-ophthalmologist at UT Southwestern in Dallas 7 times! Why couldn't I just have gotten tonsillitis or something easy? @#*%&!!! Thanks for all the great comments on this post. Let's all let each other know if we find out anything. I'll keep checking back. Jamilee
the shelves seem to jump or move,I am ok when in front picking up items,it seems to occur when I am a short distance away from the shelves, looking down the aisle.I will keep in touch and let you know if the Hynotherapy works,it is worth a try.I live in New Zealand..Auckland No doubt treatments are different here from the U.S.
I am so happy I found this topic. I have symptoms similar to all of yours. I sometimes have strain and soreness around my eyes, the top mostly. Sometimes my vision will become scattered/shakey/vibrating (eyes arent physically moving), accompanied with minor dizziness and sometimes followed by extreme drowsiness. It's ALWAYS worse when I stand up and walk around and when im inside. Sometimes the floor looks like its sloping upwards. Heat always makes my symptoms worse. Laying down on the bed and putting an icepack over my forehead and eyes seems to relieve the symptoms a little bit. The only test i've had done is bloodwork, which came out great. I have no numbness, rarely headaches. I get really anxious/panicy when these symptoms arise, that only makes it worse. Once its passed its difficult for me to remember exactly what happened. The most bizzare thing is, when I get in a car and drive around, some of the symptoms dissapear. but florecent lights and certain textures make it worse. I also have minor visual disturbances. I'm on lexapro for depression and ativan, when needed, for the anxiety. the ativan makes a huge difference. Im really scared. Im 25, had to drop out of college cause of this, i have no insurance. the only test ill be able to afford will be an MRI. The symptoms come and go and have been about the same for the last month, when they started. if anyone has any suggestions please please help me. at 13, i was diagnosed with rheynaulds and tested positive for lupus, but was told i dont neccessarily have lupus, whatever that means. I also often go to sleep with and wake up with these bizzare internal shivers/vibrations in my shoulders, neck and back of head. I hope to God this is somehow all related to stress. because I dont know what to do. im a fairly healthy guy, and this just popped up. anyone with any advice or suggestions, please help me.
Hi, my name is Xavier Xross, I’m 28 years old and do I have some strange symptoms for you. I know a lot of people have said that many times here before, but I have yet to read/hear about someone with similar symptoms. The doctors I’ve seen so far are stumped and as a result I’ve been left undiagnosed for 8 years!! To be honest, I feel my situation wasn’t given the attention it should be receiving. I’ve reached the point where suicide is knocking hard on my door. Yes… I know it should never come to that; but it’s a choice I’ve given a lot of thought. I do realize I’ll be leaving loved ones behind, but at 28 years of age; continuing like this… I see no future for me. I need help soon, and I do mean soon. I don’t know where to turn to and I don’t know what to do.
There are only 13 neurologists in Ireland and it takes months to see one.
My symptoms (Approx. 8 years and counting):
- Always continuing (slight-to-medium) headache,
- Reduced intellectual capability, always confused feeling, reduced reasoning skills, struggle to learn new things, poor long term memory, poor attention/concentration span – unless trying utmost best, absent-mindedness (I can listen to a conversation or read a few lines and have no idea what’s just been said or what I’ve just read),
- “Unreal” feeling – struggle to grasp/comprehend all surroundings, feel as if I’m in a ‘dreamy’ state. I believe this to have a distinct connection to my reduced mental/intellectual capacity, because on the (very few & far between) occasions when I am mentally/intellectually “abled”, I’ve noticed that this unreal feeling is less prominent on that day. Something I always felt the doctors need to aim their attention at.
- Lower back problem – can’t pick up heavy things or bent over for even a short time. Can’t lie on my stomach or back for even a short while – results in pain & leaves my back in a state of uncertainty for the next couple of hours.
- Middle back problem – strange one this in the sense that it’s fine as long as I keep my upper torso straight. As soon as I bent or twist this part of my back though – it feels as if a nerve is getting pinched and I get this twitchy shot of pain in the middle part of the spine.
- Middle neck problem – feels stiff especially when looking to my far left. Crackling sound very common when doing so. Chiropractor says nothing wrong – its because of over-compensating for out of aligned lower back.
- Poor sense of smell, although I can breath freely and all nasal passages seems to be open.
- Poor sense of balance
- Bowl problems: Alternating constipation/diarrhea, gas, bloating & stomach cramps. 1 (itchy) rash on foot, refusing to go away. When I’m on a low carb, no yeast, sugar and malt diet the bowl problems disappear, but only while on the diet.
- Post nasal drip, always need to clear throat.
These are the main symptoms I endure every day, every hour, every minute – for the last 8 years. The first few years I’ve seen quite a few doctors & specialists, but the only news I was left with was “to live with it”. I tried, but I cant anymore. It has reached the state where I can’t live with it anymore, I can’t maintain a job & and I feel I’m keeping happiness from my wife. Why haven’t I committed suicide already? Because I can’t until I’ve tried all there is to try – if not for my sake, then for the sake of my lovely wife.
Symptoms no 2 & 3 completely rules & runes my life. It might be useful in mentioning that when I was much younger; we’re talking 12-16 years of age: I remember getting severe headaches. The doctors said they were migraines and the other symptoms (mentioned next) are common. I didn’t have many, maybe 4 or 5 during this time frame – but they were quite heavy. The 2 other symptoms I remember was (1) I couldn’t see anything, everything was either white or I had these strange floating “rice pellets” in the corners of my eyes (2) The exact “unreal” feeling as described above. It is this unreal feeling that will be the end of me – this feeling of disengagement- & weakened comprehension of surroundings - an almost mental retarded state, is too overpowering.
The last year or so I began consulting doctors & specialists again. Over the years my symptoms has more/less stayed the same; except for my head being much worse now. Here is a list of the doctors & specialists I’ve seen over the years, as well as any relevant actions/tests undergone (approximate dates given too):
- G.P’s (“normal” checkups, subscribed pain killers and Prozac :1995-1998, 2002-current)
- Nose-ear-throat specialist (consultations, X-Ray & CT scan of head – Sinus unblock operation : Nov 1995 – my neurological problems started a few months later – Any significance?)
- Chiropractor (To work on back/neck problems – lower back was slightly out of alignment - doesn’t seem like cause of mental/intellectual problems – Sep-October 2003.)
- Psychiatrists (G.P/Neurologist referrals - no relevant psychiatric problems found – 1996 & July 2003)
- Neurologists (Cognitive & reflex tests, CT scan of brain, EEG (1997); Cognitive & reflex tests, Standard MRIs of lower-back, middle-back, neck & brain (Apr2003) – no problems found, everything normal)
- Internet Correspondence: 2 Neurologists ($14.95) think I have “complicated migraines”. But I’ve read a few articles here about other people who’ve been diagnosed with this and their symptoms aren’t remotely similar to mine.
- Homeopath (bio-resonance test – negative, Allergy test – currently awaiting result)
- Eyes tested (multiple tests – to long ago to remember exactly which : 1996)
- Complete Blood Count (normal : Feb 2003)
- Live Blood Analysis (Treated for anemia - not the reason for mental/intellectual problems: Aug 2003)
- Headache clinic (Tension of muscles on sides of head were a bit tense; they believed this to have restricted blood flow to brain. Subscribed pallet piece – wore for a couple of months – no change: Oct 1998)
- Acupuncturist/Dietician (Candida Albicans her prognosis – followed low carb, no yeast, no sugar & no malt diet. In a couple of weeks my stomach problems were almost gone, but my head staid the same: July-September 2003)
It’s been so long. I accept all the problems I have, except the way in which my mental state is affected – the choice of suicide is not because I’m emotionally torn apart; it’s the final thought and means of ending the suffering. I know it’s selfish, but you can’t always think of others. I have fought a good fight, but in the end we all fall down. Maybe 1 more round… for my wife.
Xavier Xross
***@****
i had a severe concussion about two months ago and have since had a crash course in eye problems.. i've been diagnosed with a fourth cranial nerve palsy after going to numerous doctors and finally a neuro-opthamologist. our eyes are very related to our nerves- i really recommend asking your doctors about nerve concerns even if you haven't been hit on the head.
to all of you, thank you- it's nice to know i'm not alone, and i hope that you find answers that will help you.