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Neurology  (Expert Forum)
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What direction to turn?
This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

What direction to turn?

by Bonita, Aug 16, 2004 12:00AM
My 16 year old daughter started having migraines July 14. She is sick with them daily and her appetite has diminished from the associated nausea. Her blood pressure dropped from 120/50 to 80/62 upon standing. She has extreme pain when getting up from laying down that it knocks her back down. I have been given the name of an Autonomic Specialist and have considered going this direction. Her Pediatrician feels it's could be an eating disorder, but the eating problems occured after the headaches. She eats quite healthy and even hits the junk food when she can tolerate it. I feel we need to get to the original problem. She has been sick for 5 weeks. I plan to try to see a specialist. I understand most specialists have a very long wait for appointments. This is frustrating. She has a Pediatric Neurology appointment set for 9/1/04 which will be 7 weeks in to the illness. Someone told me her daughter had similar symptoms and after 2 years of exhaustive search ended up at an Autonomic Specialist. This has since diagnosed and treated her problem as Abdominal Migraines. My daughter's physician is certain this isn't her ailment, but could it be related? Advice on which direction to turn and speed up this process would be most appreciated.

by CCF-Neuro-M.D.-CS, Aug 21, 2004 12:00AM
I would agree with the Pediatric Neurology consultation. If you are in the area, we have a pediatric neurologist, Dr. A. David Rothner, who specializes in pediatric headache. There is a form of migraine which results in repeptitive vomiting/nausea, which can be treated. If this is not the cause then other conditions such as autonomic dysfunction (given her BP change) or gastro-intestinal disorders should be evaluated. I would recommnend seeing specialists at a academic center, such as ours, who have all of the physicians available. Good luck.
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