Who at Clinic has experience?

  Thanks in advance for your advice. First, we suspect Acute Intermittant Porphyria and wonder which Department at Cleve Clinic we should contact: Hematology, Endocrinology, or Neurology? Second, who in the proper Dept has experience with AIP?
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AIP is quite rare, and I personally have never seen one, though have considered it as a diagnosis in some patients.
If symptoms suggest neuropathy (weakness, numbness, etc), see a neuromuscular specialist within the department of neurology.
If symptoms of mental confusion and/or seizures, see an epileptologist in the department of neurology here.
If symptoms primarily gastrointestinal (abdominal pain, etc) without much in the way of neurologic involvement, then I would see a gastroenterologist.
Does your primary doctor have any suggestions regarding the type of specialist you'd like to see? Maybe that would be a good starting point.
For neurology appointments, call 800 223-2273 and ask for 4-5559.
I hope this helps. CCF MD mdf.