Neurology Community
Working dx is IIH, but low opening pressure
About This Community:

This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

Working dx is IIH, but low opening pressure

Please help!!
My wife has been suffering with all the symptoms of IIH. Headache, diziness, spots in her vision, weakness, etc. We've been in and out of the hospital several times. Each time they dismissed her with just migraines. She has no history of migraine until now. I can say that she's had every imaging test possible, everything from mri w&w/o contrast, ct scans, the works and nothing has stood out. We finally me with a neuro that decided to pursue the IIH dx and she sent my wife for an LP. We were so sure we were going to find the smoking gun with the LP. However her opening pressure was like 8. Now we're completey at a loss...Does anyone have any other ideas what might be going on? Could it still be iih? if so how can we identify it officially? Are there any other conditions that share the same symptoms as iih? Please help, any information would be appreciated...
2 Comments Post a Comment
Blank
620923_tn?1426651955

  Hi...if she has low pressure it could mean there is restriction of the CSF flow, there could be several reasons this is going on....could be a cervical disk that is bulging, or a syrinx has developed from an injury to the neck?...or there is a congenital issue like Chiari Malformation....

Get copies of the MRI that was done, many times Chiari is considered an incidental finding when in fact it can be so much more....so always request copies of ALL testing and reports and get another opinion.

Good luck
Blank
Avatar_m_tn
Thank you for your response. We will certainly check that out.
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
RSS Expert Activity
233488_tn?1310696703
Blank
Marathon Running Done Over Many Yea...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
233488_tn?1310696703
Blank
New Article on Multifocal IOL vs &q...
May 21 by John C Hagan III, MD, FACS, FAAOBlank
748543_tn?1371753642
Blank
TMJ/TMJ The Connection Between Teet...
Jan 27 by Hamidreza Nassery , DMD, FICOI, FAGDBlank
Top Neurology Answerers
620923_tn?1426651955
Blank
selmaS
Allentown, PA
338416_tn?1420049302
Blank
jensequitur
Fort Worth, TX
Avatar_m_tn
Blank
Ball123
293157_tn?1285877039
Blank
Wobbly
585414_tn?1288944902
Blank
ILADVOCATE
NY
900662_tn?1380159390
Blank
johnniebear
chicago area, IL