Wrong diagnosis?

[nemo81]

Went 12 years seizure free thanks to the wonders of Tegratol CR - then two years back what I thought was petit mal was returning, however looking back the 'absences' were and are atypical about 15 per month often based around food and sometimes accompanied by sweat but no zoning off into the parallel world which I used to weirdly like. I mostly aware of where I am and with whom I am speaking although the thread goes.

I got two opinions, one change the meds, two up the meds which I did following a brain scan which revealed nothing. No some five months later the 'absences' still occur and if anything are becoming more intense.

Blood tests show only wonderful healthy blood, I take exercise, aside from a little fish I have a mostly vegetarian diet, and have reduced alcohol to boring levels of abstemiousness. I have pretty a stress free life other than the concern that something is up and perhaps myself and those better qualified have missed. Any suggestions greatly welcomed.

[flipper336]

I am allergic to Tegratol. I went 8 years being seizure free once I was put on Dilantin, but the doctors tried allot of different meds up until then. Once my seizures started "acting up" it was back to square one again.  Trying different drugs seeing what happened and going from there. I ended up having to have a VNS implanted along with other meds on top of what I was already on.

So besides changing meds or upping your dosage, there is a chance that you might need to add another seizure drug on top of what you are already taking. Keep working with your neurologist and keep your head up.

[burlfish]

what has accumulated , covered, changed in your brain during those 12 yrs to make you not seizure free ?  what about a look at alternative medicine approaches, relaxation, changing neuro pathways ?  something is different that neurology cant detect at this point. Not everything that goes on in the brain is FDA approved and determined and known, you have to do more of your own homework, most neurologists went to school in the past not in the future which you are living, hang in there and dont depend on them as they dont have all the answeres.