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about dystonia
by msofia81, Mar 04, 2009 06:54AM
My 11 year old son has the following symtoms after a streptosyme infection found in his blood in Nov 2008, and after taking methylin for 5 days in Dec 2008. Could this be related to dystonia and why?
1. frequent blinking
2. painful finger cramping
3. stress induced twitches in left side extremities
4. involuntary movements/jerks in left side extremities
5. muscle stiffness and jerks in left arm, hand, fingers, leg, foot, and toes when trying to relax
6. symtoms start at or around noon daily
1. frequent blinking
2. painful finger cramping
3. stress induced twitches in left side extremities
4. involuntary movements/jerks in left side extremities
5. muscle stiffness and jerks in left arm, hand, fingers, leg, foot, and toes when trying to relax
6. symtoms start at or around noon daily
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Does your son get Botox injections? If not. Why?? Botox has not only changed my life for the BETTER but I believe it saved my life. I was in misery and miserable to be around.
Now I'm coping well 90 % of the time instead of thte other way around. Zanaflex is a true muscle relaxer. unlike valuim that relaxes your mind then theoretically relaxes your muscles.
When I asked why , HOW , what ?? My doc said it could have been you were pre-disposed and it would have shown up eventually. The surgery ( which did go bad) was a trigger. Or it could have been the brain injury I had 8 years earlier and the surgery
( actually the anasthesia / nerve block nicking of the aciillary nerve) set off a chain reaction that landed in dystonai land. I don't think the best of the best know all the
answers. It sounds like dystonia to me. There is a publication called Dystonia Dialoge
Maybe check it out. I notice there is usually a section on kids with dystonia.