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Neurology  (Expert Forum)
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als
This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

als

by elen__0__0, Mar 09, 1998 12:00AM

  I would very much like to know some more informations about
  Myotrophin , which is supposed to be a new drug for treating ALS .
  IS it really a solution ? Is it ever going to come on the market ?
  I've read a lot of articles about the trials concernig this medicine ..
  And when it's going to come on the market , how cane some people
  from other countries get it , is it going to be that expensive ?
  Do you think there is a hope ?
=========================================================================================
Thanks for the question Lara. We have been asking the same questions about myotropin. It is given by injection. Last year at this time I was hearing the it would come to market soon and then the FDA backed off. They were planning again in May but now I hear that that will not be the case. The only people now receiving the drug are those in clinical trials. My guess is that once it is released it will cost about the same as the new MS drugs which could be around 10K per year (this is only a guess). I can't answer access from other contries but the best approach would be to go through their neurologist. Waiting is always tough. Good luck





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