hi
- over the past two years i have been checked by a number of doctors to try to discover what is causing difficulties that i have experienced most of my life but dismissed as just wierdness until they led to the loss of a job
- actual diagnosed difficulties include: ADHD, well-below average working
memoryMemory loss
Mental status tests, low performance scores on neuro psych, hi verbal scores on neuro psych, response latencies and
weaknessWeakness on right side(both
muscularBecker's muscular dystrophy
Duchenne muscular dystrophy
Muscular dystrophy
Muscular dystrophy - resources and
sensoryNumbness and tingling; eg;
hearingAge-related hearing loss
Audiology
Hearing loss
Hearing or speech impairment - resources), low attention to
visualVisual acuity test detail, left/right problems,
- my general memory is in the 99% - cool, eh?
- MRI and EEG were normal
- when i was little (infant to 5 years) I had what we now suspect were seizures, at times 3 or 4 a day, they were written off as breath holding but my mother has always thought they were seizures as they would come out of the blue for no apparent reason(meaning i wasn't upset or hurt prior to the incidents) - twice i had to be rushed to the hospital because i could not resume normal breathin
- my concern is that the right seems to be getting weaker and clumsier
- one doctor who did neuropsych testing spoke of "epilepsy spectrum disorder"
- one funny about all this is that i can write (eg: letters, essays) extremely well
- recently being checked - abdominal tenderness on let side, frequent urination, and anemia (pale, small red blood cells) - these I would expect are not connected to the above
- Any ideas on what's happening with my brain and body?
- Any questions I should be asking my doctor?
I would appreciate any help
Elsa
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Elsa,
I don't think my response will be of much help unfortunately. Your symptoms are very nonspecific and do not point to any particular direction in terms of a diagnosable neurological disorder that would explain them all. If you honestly feel that you are losing strength and coordination on the right side of your body, you need to be reevaluated by a neurologist as soon as possible, to be sure that there is not a serious cause for the symptoms you perceive. If you are interested in being seen at the Cleveland Clinic for a second opinion on your case, our appointment number is 1-800-223-2273. Good Luck, and sorry we have no major insights into your case.