aseptic meningitis or something worse?

[tsimmu]

Okay ... I'm at my wit's end. Been to my GP, endo, neuro-ophthalmologist and neurologist and still no answers. I was recently diagnosed with Graves Disease (due to proptosis in my left eye). I'm dealing with the eye issue but my recent blood word shows that my thyroid is no longer hyperactive.

Here's my story:

5 weeks ago ... got off tapazole (for my hyperactive thyroid) after being on low dose for two years. At this time I also started taking mucomyst eye drops in both eyes (4-6 times a day) and Restasis eye drops twice a day.

3 weeks ago ... joint and muscle pain, numbness and tingling started ... moved all over my body but starts between my shoulders in my back and travels throughout. Started getting mild fasciculations all over my body but only during periods of rest.

Two weeks ago... discovered mucomyst is a sulfa drug (I'm allergic). Stopped the mucomyst. Two days later ended up in ER with horrible case of hives and difficulty swallowing. Gave me prednisone and sent me home. Had MRI of brain and eye orbits ... nothing significant found but some mild swelling of my sinuses.

This week ... Muscle fasciculations are constant (worse when resting) muscle/joint pain and numbenss has subsided some but flares and is intense for short periods in my legs mostly. Also having hard time swallowing (lump in my throat feeling) and my voice is hoarse/weak with an occasional sore throat. Also experiencing facial tingling and numbness that comes and goes.

My endo swears nothing is wrong with my thyroid because blood work would show it. Since MS has been ruled out ...  this sounds a lot like ALS? No history of ALS in my family. I'm a female, 41 years old.  Or maybe peripheral neuropathy?

Or the last option ... aseptic meningitis from the sulfa antibiotic I was taking for over three weeks. Last time I took a sulfa drug was for my ulcerative colitis seven years ago. That resulted in severe joint pain and muscle weakness ... all that subsided once I stopped taking the drug.

All this stress has resulted in complete loss of appetite. My neurologist suspects aseptic meningitis and wants to wait and see if the fasciculations, numbenss, and intermittent myalgia subside. We did a lyme disease test at my insistence but my neuro seemed over confident that it's not lyme (test results are pending).

Can any/all these symptoms be attribuatble to my Graves Disease?? I fear I am going hyperthyroid again but because I'm euthyroid (all blood work normal), I can't find a single doctor willing to consider it. Could a sinus infection cause the facial numbness, and lump in my throat feeling?? I've had sinus infections before and they don't usually present these exact symptoms. Meanwhile the fasciculations are driving me crazy (literally).

Any thoughts/ideas would be appreciated. Thanks!

Tsimmu

[patsy10]

Lyme testing is notoriously inaccurate.  Most doctors (even infectious disease are overconfident it isn't lyme)  .There are no sensory symptoms with ALS. (sensory meaning numbness and tingling).