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burning yet cold upper arms and thighs

burning yet cold upper arms and thighs

For the last year I have experienced burning areas upper arms (between elbows and shoulders) and thighs.  While feeling as if they are burning they are decidedly very, very cold in comparison to other areas above and below them.  They is no redness or rash.  Apparently they are even noticed when I am asleep (by my husband).  I have had EMG, NCV, Brain MRI, skin biopsy, numberous labs including GTT, B12, toxic metals, immune, the usual CBC, electrolytes, thyroid and probably some I am missing.  My neuro is mystified.  Any thoughts?  Very uncomfortable and progressing.  Do not recall any viral infections prior to this, or have had any injections of any type or medications that may cause such a neuropathy.  ALL tests have been negative...even the skin biopsy which the neurologist felt for sure would show damage.  Thanks
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Avatar_f_tn
hi, see if your dr. can have you sent for thermal imaging. If they see that there is a clear indication of a temp. difference, this could indicate ( Complex Regional Pain Syndrom (syndrome)).
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Avatar_n_tn
Thank you for the commend.  I would like to do this  but part of the problem is the cold difference is intermittent.  Only once has the physician felt it, my husband several times and could be more if I mentioned it and very frequent for me BUT you know if I go in for the imaging my chances are not great.  My PC thinks anxiety but I have none except this...and am I anxious in my sleep...as my husband once noticed when he felt the different in one of my arms.  I think he feels it could be psychological too but he did feel the extreme different while I was sleeping.  Could it still be psychological.  I think not.  Irritating when everything checks out that it is automatically psychological.  Guess things will probably have to get worse first.  Maybe then I can attempt the thermal imaging (or might it still show something if I am not having the problem?)  Thanks I will definitely keep this in mind.
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Avatar_f_tn
look up rsd or cprs ad see if you have any of the symptoms, that may help you to decide if you are going tinto the right direction, There is a lack of education about the disease, i was told by one dr it was i my head as well, but he is a quack who didnt tkae thime to go to classes to keep up on rare conditions.Do you ever have any pain, shooting, burning, stinging pain anything ike that? with tha color change that  would look to me like cprs and that you dont have a dr there that is qualified to take care of you. if you feel that is what you have then go to the web site i told you about and try to get into that protocol at the national institute of heath. 93n0202 what that is, it is for people that have a nerological disorder that cant be determined, they will run all the test and diagnose  your problem, they wil pay for everything, even your flight and hotel even your food, But that is where you start, email me if you cant find the site and I will give you the number. my email is PAININTHEFOT@SAFE-MAIL.NET I WIL GIVE YOU THE NUMBER AND JUS FOLLOW THE PROMPS. LET ME KNOW WHAT YOU THINK AFTER YOU READ ABOUT THE DISORDER. TAKE CARE! AS
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