i want to thank you for responding to my question. i have not had the blood test done because it cost 5000.00 dollars and i have no family history. i know there is no treatment for cadasil. it is so frustrating to not know what is coming next if that is even what i have, thankyou for listening.
dianna
Personally, cadasil is a bit beyond me as I am primarily interested in MS. It was easy to look up though, and here's is a good definition by Wikipedia:
CADASIL (cerebral autosomal dominant arteriopathy with subcortical infarcts and leukoencephalopathy) is the most common form of hereditary stroke disorder, and is thought to be caused by mutations of the Notch 3 gene on chromosome 19.[1] The most common clinical manifestations are migraine headaches and transient ischemic attacks or strokes, which usually occur between 40 and 50 years of age, although MRI is able to detect signs of the disease years prior to clinical manifestation of disease.[2]
If two neuros have said this is what you have, it looks like you have already had some testing for cadasil, and more sure would not hurt. Here is a link to begin searching the Internet yourself for more information, if you like:
http://www.ninds.nih.gov/disorders/cadasil/CADASIL.htm
Good Luck! Jane