capillary leak syndrome

i was recently diagnosed with capillary leak syndrome.  Do you have any information you might be able to share with me about this disease as i have been unable to find out much about it.  i am also having a breakout of some sort on my hard palette on the roof of my mouth.  i have only ever had one ulcer in my life which was in May of '05.

  I have been ill since August of '03 following a vacation to Australlia and New Zealand for 3 weeks.  i became violently ill the day before we came home with projectile vomiting, high fever and extrme pain and chills.  although at the time i weighed 135lbs.;  within three weeks of arriving home i had gained 40 lbs. of fluid in my torso - from my neck to my knees.  (extremely tender - can't stand  clothes to touch even today) my weight is between 195 and 210 now.  i have taken mega doses of demidex in the last two years to try and relieve some of the pressure from the fluid, but now i ponly take 100 mg. for 3 days, then rest for 2 days.  because i take the diuretics, i must take lots of potassium and magnesium as well.  i have recently been hospitallized twice for IV Lasix treatment.  

If you have any information at all concerning my situation i would certainly be most thankful.  

sincerely

Stephanie



This discussion is related to Hard Palate Mouth Sores.