My 14 month old daughter has just been diagnosed with cerebral atrophy and with bilateral frontal hygromas. I'm so lost right now and not sure what to think. They don't know the cause yet, she is undergoing genetic testing on Monday in hopes to clarify stuff. She was born at 32 weeks and 5 days, stayed in the hospital for 18 days. At about 6 months of age when they were doing her check ups and measuring her, they noticed that her head was growing quicker than the rest of her. They monitored her and then referred her to a pediatrician who decided to send her for an MRI, which came back yesterday with the above problems. Now I did some reasearch on the internet, but haven't found a whole lot of info. How will this affect her? Will she be able to live a full life? What complications might we encounter? Any help would be greatly appreciated.
Thank you so much.
Nathalie, a distraught mother of a very special girl.
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