chairi malformation

I reside in flordia, and have seen 3 neurosurgeons. I have a 5-6mm herination which is very clear on the mri, I have had a csf test one of which they say is normal, with signal intensity at the foremagnum.  I have severe pressure at the base of my scull,along with two (knots0 about the size of a penny, my symptoms are weakness of my right side,to include complete numbing of my right arm. Is there any physcians in this state that have a clue about the chairi , I don't have the means to fo to New York, Please help me find someone here. The doctors seem afraid to touch this one and I need help desperately.

[toolmaker]

have you joined at wacma.com?

[patsy10]

You could try Cleveland Clinic Florida.  There is a Chiari specialist at the the Cleveland Clinic in Cleveland, Ohio.  Maybe there is one in FLA too.

I have Chiari  5mm. I have all kinds of neuro symptoms undiagnosed. 2 neuro's said this is very mild and could not cause symptoms

[Abhijeet Deshmukh, MD]

Hi.

There is Dr Ram Ayyar in Miami. You can inquire about him and get a referral from your physician.

Regards