Neurology Community
chemo induced peripheral neuropathy - multiple myeloma
About This Community:

This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

chemo induced peripheral neuropathy - multiple myeloma

i was diagnosed with multiple myeloma in 2001. i am 58 years old.  have had two autologous stem cell transplants and massive doses of chemo.  I am currently in remission but suffer from severe peripheral neuropathy in both feet.  my feet are incredibly sensitive to touch,  they burn as if on fire and are pins and needles numb all the time.  periodically i get shooting electrical shocks, more in my left leg than my right.  my left leg is numb to the knee, my right...to the ankle.  my fingertips are increasingly numb but nowehere near as bad as my feet.  i have had vad, thalidomide, revlimid, velcade, doxil, dcep and others that i cant even remember.  i have tried acupuncture, lyrica, neurontin, b complex vitamins...all with minimal results.

i live near new york city.  who can i go to for help?  my oncologists shrug their shoulders and say that unfortunately there's not alot to be done to help me.  
Related Discussions
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eating Control: How to St...
Aug 28 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1405964489
Blank
selmaS
Allentown, PA
338416_tn?1260996698
Blank
jensequitur
Fort Worth, TX
1780921_tn?1384615710
Blank
flipper336
Chandler, AZ
10389859_tn?1409925468
Blank
Foggy2
352007_tn?1372861481
Blank
LisaJF
900662_tn?1380159390
Blank
johnniebear
chicago area, IL