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chronic inflammatory demylinating peripheral neuropathy

chronic inflammatory demylinating peripheral neuropathy

Has anyone had any experience with this disease? what can you share with me? How is it diagnosed and can you have it for years before it is diagnosed?

FG
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Check out the GBS-CIDP foundation.
GBS-CIDP.org

I was diagnosed about 8 years ago.  After having EMG's and Nerve Conduction Studies I eventuallly had a Nerve Biopsy done and evaluated by the Mayo Clinic.  They concluded I had CIDP and had long term nerve damage (demylination).  Today Lumbar Punctures are also done to sample spinal fluid for evaluation.
So I did have it for many years prior to being diagnosed.  I suffer from anxiety/depression for my entire life and frequently wonder if it is really nerve damage causing my symptoms.
If I can be of any help feel free to message me any time.
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