chronic neck ear, and face pain, no diagnosis

   Hi everyone, I have been suffering for around 6 months with chronic, persistent, and extreme pain in my ears, jaw, neck and face. I had an MRI about 2 months ago which showed 3 small lesions on my brain, which the neurologist stated were located in areas not consistent with MS, and that they shouldn't be causing the pain. I have been to 2 different TMJ specialists who said definitively that I do not have it. My pain doesn't change by moving my neck, or by touching the area affected.
     I have been to two neurologists, 2 TMJ specialists, now a rheumatologist and still have no diagnosis. My total blood count has been a bit off a bit between the past 2 tests, and my rheumatoid level is at 11.
      I have been prescribed Lyrica ( helped for around a week ), noratriptiline ( did nothing ), Prednazone ( gave me insomnia ), psychobenzapine, and now Neurontin, which seems to help a bit, but not nearly enough to make the pain manageable. Unfortunately I have had to start taking Oxycontin for the pain as nothing else helps.
      The pain seems to be increasing in steps, getting worse and worse in noticeable steps, I have had body aches as well as well as an occasional low grade fever. I also have had two seizure like episodes in the past, but not sure if they are related.
  Thanks for the help in advance, hope to get an answer soon! :(