I have had viral, aseptic meningitis 3 times in the past 6 years. The first two times I recovered after about three weeks and had not residual effects. This past September, I had a bout of meningitis, which left me with horrible constant headaches, blurred vision, neck pain, and some weakness in my left arm. None of the doctors are educated enough in this disease, not even my neurologist. They think that I have some damage caused by the last bout. I want to know what I can tell them to help them, help me. I've had all the tests done in and out of the hospital since, and nobody has a cause for why i keep getting meningitis. I have been tested for HSV, AIDS, etc. I took blood test for autoimmune diseases too. I just need some guidance to help myself and my doctors.
I also had viral meningitis, but it was about 7 or 8 years ago. I'm left with brain lesions on my frontal lobe. I'm actually still lightheaded and fatigued. I learned that Herpes can infect the brain and so can TB, so can Lyme disease. I'm negative on those. Nobody knows what's going on with me. I've dealt with some neuro-emotional problems since that acute attack. I've had follow up MRI's, but the lesions are gone now. Consulted with several neurologists, but all they can say is since it hasn't resolved that unless I spontaneously recover, I might never go back to normal since it's been so long since I got meningitis.
Somedays, I feel pretty weak. Have balance problems and concentration problems at times.
Anway, don't give up looking for answers and help.
I had complications after my bout of meningitis in June. I was hospitalized for four days before my high school graduation. Not exactly perfect timing. My complications, however, were caused from the doctor. He had no knowledge about how to do a spinal tap, but attempted to anyways. 8 puncture wounds later, he finally found the spot. Yes, 8. After being in the hospital I was discharged and then had the worst headaches of my life. I had to get a spinal block, which was way more painful then the original procedure. So, almost 5 months later I am left with semi-permanent scar tissue in my back and have to see a chiropractor/massage therapist once a week to work it out, which will take at least a year if not longer. I know its not near as severe as most complications, but a complication nevertheless.
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