continuous headache for six years after AVM

HAVING HAD 3 BLEEDS FROM AN A V M 6 YEARS AGO I HAVE HAD CONTINUOUS HEADACHE EVER SINCE. I TAKE GABAPENTINE 3600m/grms A DAY WHICH MAKES IT BEARABLE BUT ABOUT 4 OUT OF EVERY SEVEN DAYS THE PAIN GETS UNBEARABLE & EVEN TAKING ORAMORPH (MORPHINE) I AM VIRTUALLY BED RIDDEN DURING THESE EPISODES. THE PAIN IS ALL OVER HEAD FRONT BACK & SIDES THE A V M IS IN THE RIGHT OCIPITAL LOBE AGAINST THE BRAIN STEM & IS INOPERABLE I HAVE HAD 3 EMBILISATIONS WHICH HAS BLOCKED APPROX 65% I HAVE ALSO HAD THE BLOOD VESSELS OF THE DURA EMBALISED WITH NO SUCCESS HAS ANY BODY ELSE GOT A SIMILAR PROBLEM OR ANY SUGESTIONS OF TREATMENTS AS I AM AT MY WITS END I LIVE IN ENGLAND  

[Dr. A. Srivastava]

I am sorry to hear that you are going through with all this. Arterio-venous malformation (AVM) is a congenital anomaly in which an abnormal connection between arteries and veins in brain can occur. Therefore, common symptoms could be headache, dizziness, feeling of abnormal sensation, difficulty in performing daily activities and vertigo. Though there is no sure success treatment, but symptomatic treatment may provide some relief in recurring symptoms.  Embolization that is cutting of the blood supply may provide some relief in small AVMs but still not a proven therapy. I would suggest you to meet your treating doctor for symptomatic treatment option in your case. Hope this helps.