csf leak?

Hello,
I posted twice prior and think I can ask some general questions that you can really point me in a proper direction.
I was DX

[CCF-Neuro-M.D.-CS]

It is difficult to interpret the pressure reading without understanding the needle position, and the table position at the time of the recording. If it truely is low, this could indicate the presence of a leak. The techniques utilized to detect a CSF leak vary depending on the location suspected. Modalities which can be used include MRI, CT scans (thin slice), CT scans with dye places into the CSF, and radionucleotide scans.

Patients with spontaneous leaks can have elevated WBC's, but this typically occurs after the leak has been present for a period of time. Also, the lympocyte predominance would not be typical. Again, it would be reasonable to have this condition re-evaluated at a large center. Good luck.

[bklk]

If you catch this note I'd really like to restate a point.
The mri DID catch a "small arachnoid cyst in the quadrigeminal cistern plate."  
EVERYONE dismsisses this completely, but could a cyst in this area expand and contract with activity and create symptoms.
I searched extensively and see a large body of the literature that shows the high incidence of incidental cysts as well as a few case studies and anecdotal reports of "small" arachnoids, dermoids, etc, that DO create symptoms and DID respond to surgery.    
How can a patient (or should they) get a evaluation as to the probability the cyst, this cyst is a few mm's so it is small is an issue?  
I'm disabled by whatever is causing these headaches and so far they have been called post-viral, migranine, etc, and as the patient I can know this is wrong!  
The headaches are FAR too constant and far too bad.  
Thanks
Brian