daughter's MRA- NF-1

Posted By ruth on January 09, 1999 at 13:32:29:







Hello!   My daughter is 10 and has NF-1. She has been having headaches almost every day for quite a while. She had a brain MRI (she has had several of these since dx of the NF about 2 years ago).She also had an MRA .  THe MRI was reported as normal. The MRA showed  the following--
           "...poor flow in both anterior and middle cerebral arteries.   Images of the posterior circulation demonstrate better flow than seen in the anterior circulation though again there are some areas of narrowing and less than expected flow, worse so in the right posterior cerebral distribution  than the left."   THEN the radiologist goes on to say that this is felt to be artifactual as there is no definite abnormality seen within the brain on MRI .  He says that if there is strong suspicion of a vascular abnormality then a  cerebral arteriogram should be done.
Her neurologist is going to look at this and we haven't heard his opinion on it yet.
SO my question is-- should we have someone else that is more experienced with nf look at the films too?  I (her mom) am going to Cleveland Clinic to see 3 of the docs there this next week for CNS lupus-vasculitis and associated problems.  I know that you have some doctors there that specialize in NF.  Would they look at my daughters MRA- and read it and give their recommendations without seeing her?  She isn't planning on coming with me.  I don't want to let this go without making sure that we know for sure that there isn't a vascular problem there since she is having these bad headaches all the time.     Thanks so much for your time---!!