dystonia secondary to cp - what more can be done

  a couple more questions:
  1) What other drugs are there besides Klonpin & Artane.  I DID take Artane for dystonia, but the nausea, vomitting, and dizziness was way more than I could tolerate.  I took Klonpin for seizures that I didn't actually have wh
  (they misread the EEG)& I barely woke up for almost 3 days even though it was a very low dose.
  2) How much worse do you think this will get?  I didn't have any signs of dystonia until I was around 11 (then it was in my feet and legs only). Since then it has spread to my hands (which aren't as bad as they were a few years ago), my neck (I had stiffness before a small wreck, but within a few days afterwards my neck was hard as a rock and twisted doward toward my rt shoulder and slightly to the side), and my back (which isn't that bad yet, but I did develop a slight case of scoliosis in less than a years time -- there were xrays from 9 mos before which proved it -- i can feel that it has gotten alot tighter along with my neck after my wreck 10 mos ago).  Some Drs have said that I just have a few focal dystonias & others s
  (who won't come out and say it) seem to think it's becoming generalized.  I would much rather know it if it is going to keep progressing.
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The selection of drugs is limited.
At this point, you probably ought to see an expert and get these answers in person, after examination, so they can be specifically tailored to you.
If your symptoms appear to be progressing, I wonder if the dystonia has anything to do with CP, or if all the diagnoses are in fact correct.
Sorry I can't get mroe specific here. If you live close to us, please do call the appointments number 800 223-2273 ext 4-5559. If travel is prohibitive, look up a movement disorders specialist at an academic neurology department near you (for example, affiliated with a medical school).
Good luck. CCF MD mdf.