Neurology Community
fibrous dysplasia unrelated symptoms?
About This Community:

This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

fibrous dysplasia unrelated symptoms?

Hello.

I am a 36 y/o female with a history of endometriosis (complete hysterectomy at 28 y/o), adhesions, and possible IgA nephropathy (long history of proteinuria, hematuria, abdominal/flank pain).

Approximately 3 years ago, I had a stroke-like episode with sharp head pain and temporary facial paralysis. Because I had a previous history of blackouts and migraines, I was sent for an MRI. The MRI showed "abnormal skull thickening." I was then sent for a bone scan which revealed "hotspots" on the skull.  The lesions were contained in the skull area and I did not (and do not) have obvious deformation. My primary care physician suspected Paget's Disease and sent me to an endocrinologist. After many endocrine-related tests I was found to not have an endocrine disorder/disease. The endocrinologist was baffled and told me I possibly had fibrous dysplasia.

Approximately 8 months later I was having increased head pain and some vertigo so I returned to my endocrinologist. I was sent for another MRI which revealed no change in the skull. Because of this, she didn't seem concerned and did no follow-up tests.

Over the past three years, I have had increasing depression (which I never had before the "stroke-like episode"), nightly insomnia, and have frequent dizzy spells (which cause me to fall at times). I have also noticed a severe decrease in my hearing ability. I have done some online research on fibrous dysplasia and have not connected any of my symptoms (other than maybe the hearing loss) to this disease. Could my symptoms be caused by fibrous dysplasia or could I have been misdiagnosed?

[Some (possibly) unrelated symptoms I have are: bruising very easily, bleeding episodes (where I bleed from my nose, gums, throat (tonsils when I had them), ears), and chronic swelling inflammation.]

Thanks for your help and feedback!
Related Discussions
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
Top Neurology Answerers
338416_tn?1413581329
Blank
jensequitur
Fort Worth, TX
620923_tn?1416285879
Blank
selmaS
Allentown, PA
352007_tn?1372861481
Blank
LisaJF
1780921_tn?1416842066
Blank
flipper336
Chandler, AZ
Avatar_m_tn
Blank
Ball123
10389859_tn?1409925468
Blank
Foggy2