glossopharyngeal neuralgia

Hello,
Is anyone familiar with this...still looking for answers and this seems to be as close as I get.

Started off with SEVERE sore throat and roof of mouth pain  packed lower face and neck in ice, and took lot's of pain killers.
tested negative for strep.... ended up in ER twice Morphine just got the pain tolerable.  Bloodwook fine, not Mono.
Went through a course of antibiotics, steroids, and anit-fungal stuff to no avail.  Dentist said all was well.  ENT said everything looked fine and did not see any reason for the pain.  It's been over 25 days now..... fever runs about 99.6 (not my norm) and now the pain has turned to a numbness, in throat and back of mouth tounge, can't taste food right,
lack of saliva.  Tired all the time.

Am scheduled for MRI this week to look at Crainal nerve that would cause pain and numbness in these areas, and Endoscopey for little blook like blisters at back of tounge.  Pain and numbness is and was on both sides and lasted for days, these we're not brief episodes on one side....   Anyone have any other ideas or suggesions.
(and yes, changed my tooth paste to Biotine, no change)  Help, and Thanks for reading this.



This discussion is related to A whole lot of problems goin' on....and on.....and on.

[elantra2006]

Hi,

I am familiar with this ailment as I have suffered with it for two years. I started with a sore throat that went away for a brief period then came back. Went to my PCP with the complaint and therefore tried anti-biotics, allergy medication & testing for thyroid. Everything came back normal so I said enough! Send me to an ENT doctor. Upon my first visit, he diagnosed me with nuralgia. I then looked to the Internet for help and low and behold there really was an actual disorder. I had all the symptoms stated. I was put on gabapentin and it worked for nearly a year (did have pain on and off throughout). Then the pain came back and the ENT said there was nothing else he could do for me and sent me to a nerurosurgeon. They wanted to do surgeyry but I wasn't ready so they increased the dosage of the medication and I was good on that for another year (did have pain on and off again). Then the pain was back again with no relief with another increase of medication. They also added tegretol and the combination of medications were making me sick and my quality of life was being interferred with so I opted for the surgery. I had the microvascular decompression done June 2008 and so far so good, no pain. Was stated that the ninth cranial nerve was being compressed by a blood vessel.

Good luck and I hope you find relief for yourself. Be assertive with your doctors!

MaryAnn