I thought i would tell you , i finally saw my neuro two days ago and he sat down w me ,a nd talked w me about the next tests. He said i could have vasulitis, but that he says MS looks possible too w the location and way spots have diminished, He did also say that if i had had a stroke or other that a stroke would be visible on MRI report. He doesn;t want me to have any real invasive tests he said rt now, such as lumbar test and any arteriogram . He said that can cause a stroke. He wants me to get asecond opinion at another big hosp to see what other tests they can do that are not as invasive.I don't know why./He said vasculitis can causea brain stroke . I am petrified . I am going to have blood work done this week one is ANCA . Does that show if its vascular? did you have that one?? Ty again.i hope you are okay. Kit
Hi friend: I am very very clausterphobic. MY dad was too, but he was a WWII vet.. i cannot even go into an elevator, but i can fly ..go figure. I have always been very high strung like my father..and i hate this..I could NOT go into the closed MRI ..when this all started ..i thought i was dying.. the weakness was soo great.. It felt as though my body was shutting down.. I almost passed out in summer, and was in bed for a month ..This is how my thing started ..but first w the extreme head pressure. Anywa.. the DR said that i should go into the closed ..but he said it was fine after i did the open.. I most likely did the wrong thing..and should have done the closed.I thought surely i had a terminal disease when this started . I still cannot belive how weak etc.. i was ?> I had been ona strict diet and lost 15 pound s before this happend.. But i had had the burning in legs a few months before that..so i guess that just made me weaker. im sorry i went on but felt that i could identify w you on this . I have friend s who have all gone in closed .. and did fine.. if you take a valium or something if you are allowed to take that yourself than thats what some DR's will tell you.. i am kinda of immuned to certain things.. I hope you and i get well soom. I feel like a hopeless burden soemtimes even liftinga basket of clothes will make me have rt arm weakness, and then my jaw feels weak.. This si all NEW i never was ill like this ever. Peace to you , Kit
Hi Kit,
try not to worry. stenosis is blockage. the fact that you can write and think is because you are getting oxygen to the brain so don't worry.if your arteries were entirely blocked i don't think we could be communicating. try to eat right watch the cholesterol and do what the dr. tells you.
are they still checking for ms? i was trying to reach exernut too because he has been diagnosed with stenosis as well.
wondered how he was doing with the headaches. interesting over xmas my headache was painful and migrainelike but has improved to tolerable. I have pain at temples on and off and on each side of my neck as well. pain is worse when head on pillow and sleeping. unsure if head causes pressure points.
when i wake up it is much better.I am trying not to worry but even the tests scare me. i don't think i can go into a closed mri. i am so claustrophobic. i will have a panic attack. Any suggestions. Can they put you to sleep. i am not kiddin. i probably will friek out. had hard time with the open air one too. had to be blindfolded.
HI lucky , you have been so kind to me to respond , i just read your post. MY MRI report of my brain in open MRI in Sept, also said something similar to yours , verterbral artery unseen or something like that , possible stenosis. I am going in town to neruo tomorrow and going to ask him what that means. He hasn't said anything about me getting vascularm testing, mainly jsut to rule out mS but i am sure that will come. What does stenosis, mean in that context. I don't think i have MS , i am 41. But you never know. KitHOpe you feel better, i have no children as hubby couldn't give..but do have two little neices i want to be here for too.. I ams cared too Kit.