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Neurology (Expert Forum)
how it is known
This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Fibromyalgia, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.
how it is known
by Gena__0, Aug 25, 1998 12:00AM
My doctor is currently telling me I have fibromyalgia...I have seen this doctor for well over a year....have had many MRI's and EEG's and have been on several different medications....Now I have to have a 24hr.EEG...I have been told that I have several scars on my brain...and recently have been having seizures.....what exactly is fibromyalgia and how is this going to effect me long term....my doctor admits she doesn't know all the facts about this...please tell me what to expect and what not to expect and is all this related to having seizures and severe head-aches?
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Fibromyalgia is a disorder understood better by rheumatologists than neurologists. Typically, one expects migratory joint pain, with "trigger points" that can activate the pain. It is much like arthritis, but there is no demonstrated inflammation of joints (required for diagnosis of arthritis, as I understand it). Blood tests such as ESR, RF, ANA, are all normal in fibromyalgia. Many patients also experience dysphoria, that is, feeling generally crummy.
Seizures shouldn't be related to fibromyalgia, per se. I'm a bit puzzled about the "scars on the brain." You may be unlucky enough to have two separate problems. Let your neurologist guide the evaluation of your seizures.
If you seek information about fibromyalgia, you may find it in a forum similar to this one (use a web searcher such as Yahoo): look for rheumatology or fibromyalgia. Of course, no internet source (including this one) substitutes for direct medical advice delivered in person by a doctor who has interviewed and examined you. If you are interested in evaluation at the Cleveland Clinic, then call 800 223 2273 and ask for rheumatology appointments.
I hope this helps. CCF MD mdf.
