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Posted by CCF Neuro MD on August 30, 1997 at 13:25:45:
In Reply to: idiopathic progressive polyneuropathy posted by Randy Law on August 29, 1997 at 10:05:18:
: I've recently been diagnosed with idiopathic progressive polyneuropathy (ICD9 - 356.4). Neurologist has done a variety of blood test to determine cause. All came back OK. Has done Nerve Study confirming reduction in sensory and motor functioning. At present time, affecting only feet (numbness) and with reduction in knee reflexes
Looking for more information regarding the course of condition. Dr. has indicated that no treatment is available. That conditon is progressive.
Any info you can provide will be appreciated.
Your condition is under the big category of polyneuropathies of mixed sensorimotor types. There are not a lot of publications on this clinical entity. Several recent articles have studied idiopathic (simply implies that the cause (s) are not known) polyneuropathy and offered some new insights on its pathologic features. Two case series out of Europe elaborated the abnormal immune response in this disorder and named it dysimmune polyneuropathy. The good news from their work is that although this is regarded as a progressive condition, the progression is rather slow in many cases. The key to this condition is the accurate diagnosis, because there are many other types of polyneuropathies, and they respond to different treatment modalities differently. To be entirely certain what you have and to explore the potential management, a full neurological evaluation as a second opinion would be necessary. The section of neuromuscular diseases at our department is staffed with well-known experts in the field, represented by Drs. Levin, Mitsumoto, and Shields. Please feel free to call toll free (800) 223-2273 ext. 45559 for an appointment at your convenience if traveling to Cleveland is not a problem. Good luck.
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