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late diagnosis

Is neurofibromatosis always genetic? I was diagnosed via MRI at age 65. Neither parent ever had any signs or symptoms(via mri,no sin discoleration) I had negativee mri's for several years. I never had  
cage ay lait spots. Last year I had mri positive for neurofibromatosis,cervical to lumbar. This year mri shows danger of tethering. These past two years,I developed neurifibromas of my left inner thigh. Could my exposure to heavy spraying of Agent Orange in 1967-69 be a factor?
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sometimes neurofibromatosis can happen to people whose parents DO NOT have it, its a weird genetic mutation, if one parent has it then there is a 50/50 chance of passing it on,
I got it from my dad and we think my dad got it from his mother,my brother and sister do not have it and can never pass it on. its one in about 4000 and is very common but not many people have heard of it.
      its proggresive, can be mild or severe you can never be sure, you may hae a severe case and your child may have it mildly or not at all...or you may have it mildly and have a child that is more affected than you are,
     I also believe that DENTAL PROBLEMS are linked in with NEUROFIBROMATOSIS TYPE 1 My specialist has told me this,
But not many people will confirm this...if anyone out there has NF 1 and DENTAL PROBLEMS please get in touch with me, as  ME,MY DAD AND HIS MUM ALL lost our teeth very young, (what happened with us ws our enamel started chipping and becoming weak, the tooth kind of corrodes from the inside out)  I was 25 and  ad ha enough so I mad the desision to have them out, I had them out 2 years ago, and Im getting implants very soon.  Im not trying to scare anyone I just want to know if anyone has had anything similar...
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Avatar universal
The below info was taken from the web site of the National Institute of neurological disorders and stroke

What is Neurofibromatosis?
The neurofibromatoses are genetic disorders of the nervous system that primarily affect the development and growth of neural (nerve) cell tissues. These disorders cause tumors to grow on nerves and produce other abnormalities such as skin changes and bone deformities. Although many affected persons inherit the disorder, between 30 and 50 percent of new cases arise spontaneously through mutation (change) in an individual's genes. Once this change has taken place, the mutant gene can be passed on to succeeding generations.
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Avatar universal
I am not a doctor, I am 22 and I have Neurofibromatosis (type 1) and have been diagnosed since as far back as I can remember. I got it because my mother also has it and so does my older brother. All the neurologists told me the disease is 50% heriditary. So hands down that is the reason why I have it. On the other hand, my mother has no history of the disease in her family. In her case the disease was spontaneous. It can happen due to a mutated gene (I think) so that may be the reason why you have it and nobody in your family does.
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