lyme ms or something else

[buschclub]

hello i am a 26 year old male from maryland i have been feeling ill for about 2 years now it all started with acold that nver went away i had low grade fever for atleast 6 months then they admitted me for fever of unknown orgin they did extensive work up blood test alll good did have apthous ulcers in second portion of duendoem then i lost my gallbladder to chrocic acalcalous and then lymp nodes and neck muscles swell they remove a node and its just reactive hyperplasia any way now they want to treat me for lyme i have a sudden curve in my spine and am taller on one side than the other i have slight wry neck swollen right shoulder wasting right pec inflammed left pec hyperactive reflexes and livedo reticularis severe memory problems slurred speach very weak in both legs with swelling of both knee caps i have not seen a neuro doc yet and they want to start iv for lyme and treat me for 10 weeks now i think i should wait to see why my neuro doc says i have an appt in a couple of weeks i am disabled from whatever this is an these later symptoms all dumped on me at one time out of the blue also my fingers get stuck sometimes severe headache all day every day prev very healthy thanks for your help...

[CCF-Neuro-M.D.-PW]

I cannot give you a clinical diagnosis over the internet unfortunately as this site is purely educational

It is true that Lyme is difficult to diagnose and lab tests are unreliable. The best way to diagnose it is through a clinical diagnosis based on your history and symptoms, which I do not have to the fullest extent.

I am not even sure that you have a primary neurological problem - hyperactive reflexes without clonus or an upgoing toe (babinski sign) are quite common in normal young people, and your only other neurological symptom is memory loss.

You probably need to see a good general diagnositician (?internal medicine, infectious disease) to make an overall diagnosis - sometimes going to multiple 'specialists' can be counterproductive unless you have aclear idea which body system is the cause. If you are in Maryland, a senior physcician at Johns Hopkins Hospital may be your best bet at a diagnosis.

Good luck

[patsy10]

Did they test you for lyme?  Results?

[buschclub]

yes i was neg. but doctor wants to treat me from my symptoms had elissa and reverse western blot but doctor says they are unrealible at best

[buschclub]

hello also forgot to mention my right dchhek is almost numb and is involved with pain

[buschclub]

saw nuro today he says i have poor gait multiple swollen muscles and says i have no scolosis and does'nt know why i suddemly droped one and a half inches on my right side i am right handed he says he definatly thinks i am ill but does'nt know what it it he ordered bllood test foe lupus and vit b12 def. i have tested neg for lupus twice he also ordered another cbc he said he would be very suprised if my sed rate were normal thought every time i have done this in the past it was normal so here i am again in a limbo he says maybe a spinal tap in 1 month but does'nt think it to be nessary now nor mri thought he thinks im sick he did'nt seem to excited about lyme though he did'nt rule it out i still have a hyper active knee reflex without clonus though he did'nt even check me for these things as my reg doc did i thought a exam of all reflexes was in order considering my problems any help you can give me i will greatly be thankful for i am stuck with my docs thet all say i am sick and told me to apply for ssi the is painful to me as i am only 26 and only diag i have is cfs cand find #$%^

[patsy10]

Is there any way you could see another neurologist?  I would go to a large teaching facility like the forum neuro said.  It's ridiculous that the neuro did not give you a full exam.  Mine did that too.  Obviously, something is wrong.  And considering where you live, I think lyme is likely.  Good luck.

[msperdido]

The "spine curvature" and muscle wasting in the shoulder area could be due to 11th cranial nerve damage.  This is my case.  I was initally diagnosed with adult onset scoliosis - the KEY is - when you are supine, as scoliosis is rigid, the scoliosis is still evident on xray. If it is muscle wasting - it's only evident when upright.

Dr. Burrascano (the Lyme King) has published info on this.

[beccas]

Just a note that about 6 months ago I had many neurological symptoms that were similar to what I am reading here. It took a while but whas diagnosed with Celiac enteropothy or gluten intolerance. I had severe dizziness, burning of the hands feet and top of head, fatigue, ataxia, joint sweeling and pain, vasculitis, skin lesions, brain fog, muscle jerking/spasms at night and overall muscle vibrations. Dissiculty breathing. Early on I had difficulty swallowing, chest pain and extreme palpitations. Mri even showed possible demyelinations disease. Now that I have changed my diet, I am sooooooooooooo much better, the celiac has caused malabsorption of vitamins and I am very low on magnesium and ferritin. This disease can cause many autoimmune disorders, I have hypothyroid. Anyway, it has been a long road but I am getting better with the help from my rhuematologist. I encourage anyone with these symptoms to think of this as a diagnosis, the diet change is the cheapest most effective way to feel better. This you can do on your own, without the help of a Dr. Diet change is life long, but then again so is feeling bad. Hope this helps even one person.