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meds linked to tardive dyskinesia of tongue

by verna2, Aug 07, 2008 07:10PM
Is it possible to get a list of medications that could worsen my state of tardive dyskinesia......
Having been diagnosed with atypical neuralgia: I took alot of meds and now, I am scared of which ones I can take or not.
On top of it, I have my menopause and I was given:UTROGESTAN, could it worsen my state?
I am tapering off Baclofen because, I don't know its side effects....
Then there is oxycodone.....
Transtec patches:buprenorphinum
and Loramet to sleep.....

and, I think that loramet is nasty for my situation but, don't know what to take to sleep.....;since, I am also becoming tolerant to it.

Need so badly help....please help me.....
Member Comments (7)

by ILADVOCATE, Aug 18, 2008 12:23AM
To: verna2
I have tardive dyskinsesia as well in advanced forms (you can see my post for tardive psychosis which is an experimental criteria I'm being evaluated for) so I am careful of that as well. I obtained a website with a list here:
http://www.tardive-dyskinesia.com/
though I don't know if its comprehensive. All antipsychotics except Clozaril can cause it (I'm on an experimental antipsychotic glycine that can't but that won't be through the studies for a few years) and of course that has severe side effects of its own and there a number of stomach medications. A few studies have tentatively shown that SSRI's (a specific class of anti-depressents from Prozac to Luvox) have caused in some cases so that might be another class of medications to tentatively avoid. And there are a fair number of stomach medications of a specific class such as Reglan to avoid as well (this is medically confirmed). I found no luck in a successful treatment for tardive dyskinesia (I am on Klonopin and three muscle relexants, Methocarb, Skelaxin, Flexaril) that really worked (obviously these control it without their help it would be fatal in me) or didn't have severe side effects such as the anti-Parkinsonian drugs which caused psychosis and sedation and made some aspects of the movement disorder worse (Aricept, Bachlophen, Requip, Mirapex) but then after a presentation by a clinical neurologist for a Parkinsons's group I found out about rhodiola, a natural rhemedy which has been extremely helpful. It is in government study in the United States but you have to buy the pure form, not goldenseal and be cautious of dosage, just like a medication. This is a reliable brand: http://www.gnc.com/product/index.jsp?productId=2133909&cp=&kw=rhodiola&origkw=Rhodiola&sr=1
I'm not familiar with Utrogesten but a search didn't call up any effect on tardive, Loramet is a benzodiazipene and there are many more out there (I'm on Klonopin as I said) so your doctor could titrate you from one to another. They are helpful on tardive dyskinesia to some extent as they control muscle spasms. And the other medications you are taking don't appear to be in any class of medication that could worsen tardive dyskinesia but they certainly have a potential for addiction but I'm sure you are aware of that and guarding for it. Please don't follow up with any of my suggestions without consulting with a doctor. But let every doctor know you have tardive dyskinesia and wear a medic alert bracelet like I do so all doctors and hospitals now. And see a movement disorders specialist. And if you can find out more information and let your medical provider know and they accept the decision, rhodiola has been of great help to me and has been helpful in studies. I am advocating within the system for treatment and in contact with psychiatrists and neurologists who are researchers so any reccomendations I make are from clinical studies but in any case make sure to speak to your neurologist first to rule out interactions with all the other medications you are on (I don't know what rhodiola interacts with for example, Oxycontin has many drug interactions). Good luck and feel free to send me an onsight e-mail if you have any more questions.

by ILADVOCATE, Aug 18, 2008 05:48PM
To: verna2
Just to let you know I recieved word from my neurologist that Tetrabenzene was approved as a medication called Xenazine. It was approved for Huntington's Disease but the medication itself has long been used for tardive dyskinesia. It has a side effect profile that sounds a bit challenging but its supposed to be highly effective. I'm considering trying it but I'm not sure but at least now in the United States it won't have to be imported. I don't know its status in the rest of the world but what is approved in the United States is usually approved elsewhere.
http://www.fda.gov/bbs/topics/NEWS/2008/NEW01874.html

by verna2, Aug 21, 2008 08:29PM
To: ILADVOCATE
Thanks so many tahanks for answering. So, I should stop BACLOFEN....
Loraet is known as ativate....and I have feeling that it could also be a culprit.
Unfortunately; I don't see how I could manage to sleep.
Is there another name for RHODOLIA?
I trie Xenazine and all it did was deppress me and I did not put my nos out in more than a month.
What do you suffer from?
And what state are you? Your doctors seem to be good ones.

I am in deep ****. And at times, I want to let go.....

It is so hard to be understood. And Help seems so far away.....
And I end up hating myself.

VERna2

by verna2, Aug 21, 2008 08:44PM
To: ILADVOCATE
What ii your e-mail.

by verna2, Aug 22, 2008 11:42AM
To: ILADVOCATE
Where is your post for tardive dyskinesia?

by verna2, Aug 22, 2008 12:02PM
To: ILADVOCATE
Dear Carl, I cannot manage to enter those addresses for RHODOLIA...
I wrte the whole thing?
I cannot find it.

by ILADVOCATE, Aug 23, 2008 01:01AM
To: verna2
This should work
http://www.gnc.com/product/index.jsp?productId=2133909&cp=&kw=rhodiola&origkw=Rhodiola&sr=1
Or just go to General Nutrition Center
and enter Rhodiola, 340 mg.
Make sure to ask your doctor first. This is in government study by the FDA
but it raises dopamine which is what helps tardive and raises serotonin which improves
mood but because that works on depression at too high a level it can bring on elation.
1-2 pills is the reccommended dose from the clinical study. I haven't had any side effects otherwise except for its primary use as a diuretic which just means more bathroom visits and its activating so its best to take during the day earlier so it doesn't keep you up at night. Hope this is helpful. If you end up taking it and feel comfortable with it post how it works out. I found a huge difference. One day I had terrible dysphagia (dystonic spasms in my throat) and the next day I could eat pizza but everyone experiences things different though I hope you have favorable results as I did.
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