muscle cramps-painful,over reactive muscles

Hi Ive suffered extreme painful muscle cramps, fasticulation, weakness, suffer with cold limbs, cannot feel items well in my hands - eg cannot tell if there is water in the glass-only by sight not feel. This has progressively gotten worse over the pastrs- I am now fulltime in a power wheerchair. I still remain undiagnosed - my paper owrk says "Muscle Cramp Syndrome". Ive had an MRI, EMG blod tests - all apparently OK. I had  muscle biopsy done 7 years ago - the Dr said it came back fine. Ive had numerous gastro surgery due to problems with gallbladder and bowel.
Ive just had uterine ablastion due to me being constantly aneamic-  which according to the Dr is due to my periods - which are very regular. ( I had 3 transfusion in the past 2 years because of anemia) The Dr who was taking my history proir to surgery said he noted from my history that I had a nuerological disorder  -I told him it was undiagnosed - he responded that according to my biospy report I have a disorder which was probaly caused by a severe injury/illness/virus as a child - and advised me to ask my parents.
This was news to us - great news we thought - asked mum - she said Id been very ill in hopsital as a child with measles. We reported this to the Dr who said it was the likely cause of why Im where I am today.  Why has no-one told me, as apparently I could have been doing something to prevent myseld ending up in this chair!!!  
My muscles over react - when I use a muscle it thinks it is doing so much more than it really is therefore acts like an over worked fatigued one, and cramps. I do not have any tiredness or feeling of being unwell in myself at all - which is frustrating. I sleep in 2-3 hour bouts - as I must move my muscels to a new postion or they will become cramped from the one postion for too long! Can anyone offer help, suggestions, or do you have similar conditons to mine?? I welcome any comments please, as I used to be a very active fulltime working mother of 4, wife, and farmer who enjoyed alot of sport and was social and happy. Any help.thoughts, suggestions please. cheers, Su