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myoadenylate deaminase deficiency

myoadenylate deaminase deficiency

Posted By Bert Durgin on April 12, 1997 at 16:51:42:









Can you tell me what research is being conducted on this diesease? I understand that it is a form of muscular distrophy, and I have contacted the local chapter of the muscular distrophy association, but other than give me a fact sheet they have been of little help in telling me what the present status of the research is. Who is working on this? Are there any research programs going that include clinical trials for medication or gene therapy? Where do I go to find out more about this painful condition?
Thank You for Your Assistance
Bert F. Durgin
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