I am a 25y old male, Asian. I was dx'd with urinary retention about a year back and need to cath 4 times a day to empty my bladder. After about 6 months noticed
sensoryNumbness and tingling changes in
sexualCauses of sexual dysfunction
Erection problems
Female sexual dysfunction
Sexual problems overview function, then two months later faced constipation. I have recently started to feel my left leg toes fan out whenever I lift up my feet +
tremorEssential tremor
Familial tremor
Hand tremor
Tremor in the
shinShin splints/tibial muscle, can still
heelHeel pain
Retrocalcaneal bursitis walk though. Both my arms and legs are
hyperHyper-sal reflexive 2+ symmetrically. Sometimes I get mild spasms in both my hands (simultaneously), pain behind both eyes on and off without any visual disturbances. I have no cognitive and gait problems.
I have undergone plain T1 and T2W FLAIR MRI of brain and spine at 1.5T multiple times and 3T plain sagittal screening of spine once with no detectable lesions. Had nerve conduction test done for PNS, CSF checked for various common pathogens/STD -all negative. My neurologist says that I don't show any clinical signs of MS as I don't have any upper motor problems and suggests that I undergo neuromodulation/LDDM to correct urine retention and protect kidneys.
I plan to approach a different neuro again. Would Gd contrast make a diff. at 3T for MS lesion visibility? Is it possible to have gross neurological deficts due to MS/infections without showing any lesions on MRI?
Please be advised that I am not responding to you as a physician and that I am not advising you and that what I write is not meant to be construed as medical advice or a replacement from the forum neurologist, et al.
As you may know; Multiple Sclerosis is almost un-heard-of in Asian people. However, a taxing and similar, if not exactly the same, condition does not escape or spare different races and ethnicities. Lyme disease can present in the exact same way that you have responsibly and perfectly kept note of your health deficits.
Depending upon locale I would suggest finding what is commonly called an "LLMD" or an "LD MD." Both of these mean, Lyme Literate Medical Doctor. You may want to do some of your own research and seek support in the way of questions and answers at www.lymenet.org. You may also want to google the term, "Lyme disease and Multiple Sclerosis," where you will find that Lyme disease is a common but under diagnosed differential diagnosis for "MS." It is nearly impossible to tell the two disease apart. Many people believe that they are in fact-the same thing. This has yet to be determined. In general, the outlook for Lyme that is controlled by anti-biotic therapy is much more postive to that of socalled, "MS." This too could be debated by some.
Your symptoms, however, are variable and non-specific and can be caused my a multitude of conditions, if not, a combinatory effect (many conditions are once). Recent studies also show that lesions are no absolutely necessary to prove "MS."
I hope that I have been helpful.
Good Luck!
JCmcc.
From your description , you are describing a neurogenic bladder mainly with some sexual change isuues (is it erection issue? or ejaculation?), constipation, and a subjective sensory complaint....Putting them together means or give a possible diagnosis of subacute cholinergic failure which sounds progressive.
The differential diagnosis of this is very broad starting from a simple viral infection (wait and see issue) , rheumatological diseases (Most likly ruled out by your GP/Neurologist) , Neurological (almost excluded ), and few others could be very unlikely in your case especially you don't smoke and no history of loss of wt or loss of appetite..ext
You need to ask your doctor for a chest CT, and a better follow up on the constipation issue
Bob
Your personal attacks are absurd and disgusting. Some of us are medical students, some of us are simply educated because of our own disease and some us just know our STUFF. E.G. I know a dentist, two retired docs, and a few more professionals/students on here-who care. There is nothing absurd about my post.
Your post offers this person no help. Your comments are totally unkind-and-please, English teacher, where are the mispells? Your in need of help.
Heartless..
Talk about heartless.
THERE IS NOTHING FAKE ABOUT ME.
GET A LIFE.
AND--I HAVE HELPED SO MANY PEOPLE ON HERE, JUST ASK THEM.
FOOL!
The demelination affects the large myelinated fibers while the autonomic systems are opersted by small almost all non myelinated fibers, plus the spine 1.5 tesla MRI is negative in symptomatic patient for a long time!!
This case is still autonomic dysfunction esp cholinergic fibers, and the possibility of a paraneoplastic disorders esp from SCLC or a variant of GBS
Bob
I just read BobbHilton's post explaining his response to the poster above, but I also want to say this:
I missed this in your post before: I believe the chest CT was suggested in case the patient has a chest/lung tumor which could be causing a paraneoplastic syndrome that is causing his autonomic dysfunction. Paraneoplastic syndromes can cause autonomic neuropathy-urinary retention, decreased sensation in perineal area--which the poster has. I know. I just underwent a thorough evaluation for autonomic dysfunction at Mayo and a chest x-ray (as well as a paraneoplastic panel) were done in case my autonomic dysfunction was secondary to a lung tumor to rule out a cancer as the cause of my autonomic problems. In fact, 17 years ago when my very first symptoms presented (Horner's syndrome), that is the ONLY test the neurologist did (a chest x-ray), looking for a Pancoast syndrome. So I think I can safely say that is why BobbHilton suggested the chest CT, without putting words in his mouth. Regardless, that is why a chest x-ray or CT of the chest is done when one has autonomic neuropathy-which urinary retention and decreased sensation in perineal area qualify as.
So even though the poster might have a spinal cord lesion/MS/Devic's disease as the cause of his autonomic symptoms in spite of the negative MRI, it is also possible he has either a secondary autonomic neuropathy due to a paraneoplastic syndrome (from lung or other tumor) or even a primary autonomic neuropathy/failure. His advice was not at all off the wall. Even though I am a layperson/non-medical person it makes a lot of sense just from the knowledge I have gathered in my reading and from first-hand experience.
You mean you've never been called "FOOL!" by a medical professional before? You must not be seeing the right ones :) Yes, I read all his posts on this thread (and other threads as well).
Well, I was trying not to go there--because he is probably a nice person in real life--but, no, I (like you) never thought he was the things he claimed to be. I'm just not sure why he is doing it. All the same, I hope he doesn't leave the boards because his posts are entertaining...
I thought JCmcc was a medical student and a neuropsychologist...when did he start studying to become a priest? I almost peed in my pants when I read your post. Come to think of it, there was someone several months back that said they were in the priesthood/seminary, but I didn't connect it with his name/moniker until you mentioned it.
All I can say is, if he is in seminary, he better get in that confessional box and start atoning for his fibs :)
BTW - The CC Responding Neurologist here offers some amazingly lucid thoughts and recommendations. I look for new responses daily and am learning a lot.
The retired neurologist is also helpful. Part of the problem in interpreting his responses is the older terminology he often uses. Even if he's wrong he offers some interesting points.
Margaret,
The 'materialistic world" posting on the other forum by BobbHilton clearly was a reference to exactly that-your (and perhaps others') questioning/incredulity that any doctor would choose to donate his time for free when he could be out making money. Why is that so hard for you to believe that a doctor (especially a retired one who has more free time) would choose to do this??
Also, as I said, I am not in the medical field-just a very well-read layperson-but I do not see that he has handed out any bad advice or incorrect diagnoses, and I have read all his postings. Some of what he says I am not familiar with, but everything that I have heard of/read up on in the medical literature (and it is considerable in the past 10 years since I've had the internet/seeking a dx) is consistent with what he says. That is why I think he is legitimate. There is just no way he could know all that he knows otherwise. And I do not see him handing out diagnoses or advice cavalierly at all, but rather offering suggestions regarding possible diagnoses, suggesting tests that might be done, explaining how the body works, etc. There is already a disclaimer on this site--so he really doesn't need to make one.
Quixotic,
Of course I think your comments about JCmcc are right on target. I never believed he was a medical student (and actually I believed even less he was a neuropsychologist considering his flighty online behavior), but I do know there are some people who seek his "advice/opinion," thinking he is some kind of medical professional, asking him to respond or e-mail them--so I agree that could be consequential if he gives them incorrect information. It's just hard to believe any one could be that naive (to seek his advice), but I guess it comes down to how familiar you are with a certain field/subject--and he is quasi-educated-which probably makes it worse.
It appears that you think BobbHilton is legitimate from what you wrote--but you didn't really say one way or the other. You don't have to answer if you don't want to, but since you are a physician, do you believe BobbHilton is a retired neurologist? I'm just curious. I know what I think, but I would like to know what you think since your impression would be more based on facts/your knowledge of medicine. Thanks.
I'm not sure if you are still follwing this thread, or you will be able to see my post, but these are few of the recent publications which you could visit any main medical library to get them and learn more about your case
1-Curr Neurol Neurosci Rep. 2006 Jan;6(1):Page 57-64
Talks about Immune-mediated autonomic neuropathies published by Neurological Institute of New York, 710 West 168th Street, Unit 55, New York, NY 10032, USA
2-Arch Neurol. 2004 Jan;61(1) pages 44-8
Published by the Department of Neurology, Mayo Foundation, Guggenheim 811, 200 First Street SW, Rochester, MN 55905, USA
3- N Engl J Med. 2000 Sep 21;343(12) Page 847-55
Talks about autoantibodies to ganglionic acetylcholine receptors (Cholinergic) in autoimmune autonomic neuropathies.published by Department of Neurology, Mayo Clinic, Rochester, Minn 55905, USA.
God bless
Bob
Margaret,
The 'materialistic world" posting on the other forum by BobbHilton clearly was a reference to exactly that-your (and perhaps others') questioning/incredulity that any doctor would choose to donate his time for free when he could be out making money. Why is that so hard for you to believe that a doctor (especially a retired one who has more free time) would choose to do this?? (end quote)
I have never, ever, ever said a word about a doctor "donating his time for free when he could be out making money." Did you read my previous post? I pointed out that that's a straw man--one that both you and Hilton keep repeating. My issue with Hilton has absolutely nothing to do with some perceived belief that doctors won't donate their time to help people (in fact, I know many docs who do just that).
Hilton made it up and you're running with it and it's beginning to tick me off.
I wrote: The 'materialistic world" posting on the other forum by BobbHilton clearly was a reference to exactly that-your (and perhaps others') questioning/incredulity that any doctor would choose to donate his time for free when he could be out making money. Why is that so hard for you to believe that a doctor (especially a retired one who has more free time) would choose to do this??
You wrote: "What in the world are you talking about? I have never, ever, ever said a word about a doctor "donating his time for free when he could be out making money." Did you read my previous post? I pointed out that that's a straw man--one that both you and Hilton keep repeating. My issue with Hilton has absolutely nothing to do with some perceived belief that doctors won't donate their time to help people (in fact, I know many docs who do just that)."
Yes, I did read your previous post and you asked why no one questioned why a doctor would want to give his time to this group instead of make money. Your exact words were: "My "duh" comment referred to the fact that no one here has questioned why a doctor would want to give his time to this group rather than make money. He's set up a rather weak straw man and not bothered to adddress the true issues." I don't know how it gets any clearer than that, Margaret. You DID question his motive in choosing to give his time to this group instead of make money. Perhaps you think he is bringing up the materialistic world subject as a "straw man" to divert attention from what you see as his handing out of "incorrect diagnoses/cavalier advice," but you DID question why no one on this board questioned his motives in choosing to donate his time on this board instead of make money.
And I have to say this as well. Your continued insistence that his interchange of the words neurology and urology (clearly he simply misspoke!) is evidence of his pulling a fast one on us (his not being a retired neurologist-who he says he is) and evidence of his lack of knowledge is quite ridiculous if not disingenous as well. He had even made mention immediately preceding his misspeaking of cholinergic failure and a neurogenic bladder-which attests to the fact that he thinks the cause is neurologic in nature. You do acknowledge later that he might be a PA or foreign medical student (at most). Are you going to tell me that a PA or medical student wouldn't know the difference between a urologist and a neurologist?! Even an LPN would know the difference! Yet you will not admit that which is patent--that he simply misspoke. People misspeak all the time. *I* do it all the time--and it has nothing to do with what I do or I do not know or "bad language skills" as you mentioned. Considering this is his third language, I'd say he speaks English pretty damn well; quite frankly, he writes better than many Americans who have English as their first language!
You wrote: Hilton made it up and you're running with it and it's beginning to tick me off.
What did he "make up?" He is allowed to say what he thinks-that he finds it sad that the world is such a suspicious/disillusioned place that some in it can't bring themselves to believe that a retired physician would choose to donate his time to helping others without having some ulterior motive or without being an outright fraud and not a physician at all. I couldn't agree with him more.
Thank you for the articles you posted above for Udaysk with regards to immune-mediated autonomic neuropathy. I also intend to check them out, though it's possible I've read them already if they are the Mayo ones regarding experimental AAN induced in rabbits/mice injected with the antibody (the Vernino/Sandroni (sp?) ones). I was just diagnosed with autonimmune autonomic neuropathy and have been reading everything I can find on it on the internet, but the suggestion about a medical library is a good one which I hadn't thought of, especially since many of the articles I really want to read can't be accessed unless one has subscribed to the neurology journals they're in.
Just for the record, I've never questioned why a doc would post here instead of trying to make money. It's Hilton and Annie's argument and it's a stupid one.
{Your words were: My "duh" comment referred to the fact that no one here has questioned why a doctor would want to give his time to this group rather than make money.}
And I am amused by your implication that my use of the word "duh" so discombobulated you that you became unable to process simple English. Hope you had a fainting couch or smelling salts at the ready.
Me: I know your "Duh!" post was clearly a response to Hilton's "materialistic world" post. And so was your earlier post where you said "Huh"? (which you later turned to "Duh!") regarding his "materialistic world" post.
Margaret: Were you imagining some sort of time travel on one of our parts so that my later post could have actually inspired his original one?
Me: No, but whatever you want to write, go ahead and write it.
Margaret: And I am amused by your implication that my use of the word "duh" so discombobulated you that you became unable to process simple English. Hope you had a fainting couch or smelling salts at the ready.
Me: Margaret, I tried to be as clear as I could be that your words could be construed in two different ways, but you have a real knack for ignoring whatever I write which you choose not to acknowlege and try to capitalize on the rest. I'm not sure what your agenda is or if you just like to argue.
You can believe what you want about BobbHilton. You are free to insult his English language skills (even though I told you he posted that English was his third language) and ridicule his knowledge of neurology. I really don't care whether you believe he is a retired neurologist or a kid on spring break or a nurse's aid for that matter. What really bothers me most are your unkind words towards an older man--and it probably bothers me even more so because he is foreign. I think it is pretty generous of someone (whom I believe to be a physician) who is not American and whose first language is not English to come on an American neurology forum to share his time and knowledge trying to be helpful to others. And as far as the smelling salts and fainting couch, well there was a word that came to mind when I read that, but I can't seem to recall it now. I won't even say what it rhymes with.
If you want evidence of Hilton's lousy advice, just compare his comment to the real neurlogist's in this thread.
And I have never figured out why some people like to write 500 words when 50 will more efficiently convey the very same thought.
Comment 32...
(Are you going to tell me that a PA or medical student wouldn't know the difference between a urologist and a neurologist?! Even an LPN would know the difference!)
How did I get involved in this...???...(Even an LPN would know the difference!)???????
I feel like the Geico caveman...LOL
I hate those Geico commericals :-(
I do know the difference between a neurologist & a web med...er, too. LOL
I welcome any knowledge that Bobb Hinton is kind enough to share with us. As a retired neurologist, he not only has knowledge but vast experience. He is a true blessing & I enjoy reading his comments.
I AM AN LPN!!! Would anyone like to dispute that fact.
It's not just a name...It's who I am...I LOVE BEING A NURSE....AND APPARENTLY BOBB HINTON LOVES BEING A DOCTOR!
Blessings, TJ (NURSELPN}
See I mis-typed too...Bob Hilton,instead of Hinton.
TJ
TJ, I do not deserve "LOVES BEING A DOCTOR" because I did not do this years ago when I was young.... I did spent every free minute on travelling/vacations...About my posts I always try my best to analyze what the patient say and connect it to how the body works (supply/demad..and what went wrong...the old fasion medicine where a simple x-ray was a great blessing to have..while these days we have the tecnology to analyze things in more details and more accurately but the load of the patient mainly plus other factors limiting us from the full benifits)
God bless you
Bob Hilton
You are welcome. And thank you for all the time you gave to this forum (and for answering my question). It was generous of you. I saw you mentioned several days ago that you were thinking of restarting your practice part-time-I guess your retirement didn't last long-and I'm sure your patients are lucky to continue to have you as their doctor. I can tell you are a good listener and not dismissive of what people (patients) have to tell you of their symptoms. If only all doctors could say the same. I hope you will continue to visit the patient-patient forum here on weekends if you have the time. I'm sure it will be greatly appreciated by all even if you give just a little bit of your time to this board, sharing your knowledge. Best wishes for restarting your practice.
I am sure that, for those of you who have posted against me, that you think that I am that easy to figure out. I am actually shocked that you would put that much energy into trying to figure me out. It confuses me.
Anyone can join this site or other sites and answer questions to the best of their ability or lend ideas. Who that person is on the outside is entirely private. As well, it should be completely understood that the only person anyone should even consider taking advice from on here, seriously, is the CCF.
Are you that closed minded to believe that a person could not have attained their BA and Masters in Physiology/Pscyh-hence moving onto the neuropsych. The person, for personal reasons-takes a break and tries seminary because they truly like to help people and then because they are sick-it does not work out-and the person based on prior academic criteria goes on to finish a Ph.D.
Sorry to tell you that there are very driven people, who are sick like me. I am
OR THEN:
There are a few JCs on here. Could it not be possible that their is a co-incidence and that there are more than one people with those letters and those conditions. I think that wasting your energy worrying about whether or not I am a liar is stupid. Don't any of you work or go to school?
Leave Bob alone. He is helpful.
Also, some people, when online, use fake MOs to keep secret for certain reasons such as being fired from a job for their illness-who knows. Give it a rest and relax.
These are the very last words that I will ever type on here again. I am moving on. I have lended good comments on here and have truly wanted to help. I seriously mean that-I cared.
I am tired of being misunderstood and accused. I am over with it. Peace.