neurogenic bladder and autism

[tiredmom71]

My son was diagnosed with a neurogenic bladder about 2 years ago.  He will be 8 years old next month. He has never been continent with either bowel or bladder.  He also has high functioning autism - PDD-NOS.  He was very late to talk (about 2) and only after about a year of speech therapy.  He has had the problem of never fully emptying his bladder as well as "leaking" or urinating approximately every 10-20 minutes.  He has no sensation of needing to go until it's already happening.  At one point an x-ray diagnosed him with spina bifida occulta but later that was proven false with either a CT scan or MRI (I can't remember which one)  All the research I have done shows that neurogenic bladder is almost always linked to a more significant neurological problem (CP, spina bifida, etc.)  He has seen a neurologist once after the initial x-ray diagnosis where there was a history taken and short exam given.  He found nothing remarkable.  In August he had both a mitrofinoff and mace placed and his bowels have been managed by flushing him nightly.  He is completely maxed on meds (taking 10 mg ditropan twice a day and 25 mg impiprimine 3 X daily)  However we have had no success with the urine continence.  Even if we drain him completely every two hours, he still urinates almost every time in between.  I logged a week and he was wet 71 out of 72 times.  Last Friday he had deflux injections into his bladder neck, and while there is still some hope this may be successful, I am very skeptical and worried about what we will do next.  There has been some discussion about closing the neck of his bladder permanently and managing it completely through the mitrofinoff, but I am very fearful of his future compliance and the amount of risk that might put him in.  In addition his nutrition is poor enough that his teeth are greatly suffering (they have no enamel) and his BMI is below the 10th percentile.  He has major sensory issues with food textures and taste and outside of around 10 to 20 select things will vomit if trying to eat other (and healthier) foods.  I feel like we must be missing something and wonder if it wouldn't be neurological.  Do you see any red flags?