neurogenic pain

Does anyone know what are common causes of some neurogenic pains?

[Dr Vinod]

Damage to the nervous system itself, due to disease or trauma, may cause neuropathic (or neurogenic) pain. Neuropathic pain may refer to peripheral neuropathic pain, which is caused by damage to nerves, or to central neuropathic pain, which is caused by damage to the brain, brainstem, or spinal cord.

[needanswers54]

Well, I just wrote a long question with a history and it seemed to disappear.  I do not think that you received it.  So, I will attempt to more briefly rewrite it.

I was diagnosed with migraines about twenty years ago.  I later was found to have a high ANA with a negative reflexology.  Lupus, MCTD, etc. were propsed.  However, the lupus has been the one going back and forth.  Recently I was diagnosed with cervical cord MS.  A dozen small puntate lesions in the brain--not the typical MS lesions.  Dr. does not believe migraine or HBP, either.  It is a mystery.  Past ADEM considered by most.  Persistent lesion at posterior C2 and centrally located growing dorsally transverse lesion at C7.  C7 active for a year until recently and C2 shows on the flair.

I have had several biohazard and chemical exposures on the job.  Getting a full discosure has been difficult.  The neuro thinks that this is MS and exposure problems.

My migraines are so severe I became disabled with them.  I have graduate work in science and additional medical certifications.

I have had the thunderclap, opthalmic, classic and other usual migraines.  

They are to the point that it takes at least two IV boluses of dilaudid and three or four boluses of zofran and compazine to rid of them.  It is thought that they may now be going into my heart as I am getting ectopic beats with them at times.  My heart tested great on the stress test.

I have had migraine status in the past in which the headache has gone for over three months.  NOTHING seemed to work.  I have been on practically every preventative and even in trials without avail.  I continued to work for a long times and accomplished a lot.  But, they have wreacked havoc on my life.  I am now disabled.  

I also sometimes notice and increase in my tremors and truncal titubation when I have a migraine.  Also, I have developed auditory neuralgia  I do get auras and feel as if my body is being overcome with energy.  I used to feel it going from the front to the back of my head.  Now, it feels as if my brain is mashed potatoes.  I have been tested for seizures and the tests were negative.  Funny thing is that when I sometimes lay downon my back perfectly straight, it is as if I become a fish out of the water either with my body or my limbs.  This even happened during my siezure testing.  Then, the strobe light which would normally aggravate me, stabilized me--as did the oxygen testing.  It was interpreted as negative.  Two more sets of test were negative.

I can feel my brain being overcome with energy and develop cognitive problems until I get the dilaudid (if the Maxalt does not work).

The only way I can get a good scan is with lots of tech patience and about thirty mg of valium, and some vicoden and muscle relaxers.  This scares me.

Normally, I daily try to take the absolute minimum of medications that I can.  My neuro said I should take more.  I have had to start taking more this last year.  T

The last two scans I got them to give me adivan which caused me to shortly sleep.  I still had motion artifact but do not know if it was from tremors or snoring.

Since my migraines seem so linked to my MS symptoms, I am wondering if there is some kind of central neuropathy causing or linking all of this.  I do have a herniated, or at least a prolapsed C5-C6 with spurring and indentation of the thecal sac.  Much spurring and prolapsed disc in thoracic and L3 with mile (stage one) aterolithesis at L4.

The migraine pain is enough to consider suicide.  However, I keep telling myself it will go away.  It will go away.

I am so tired of being mistreated by the EMS and ER staff because I am coming to the ER for my migraine as I am being instructed to do by both my neuro and the urgent care center.  I am without a car so I sometimes must use the EMS.  Their remarks are causing me anziety which I am sure does not help the situation, either.  They put me down for going to the ER for my migraines.  And the ER says"Back again?"  Weren't you just here?  I often ask them to just try and give me toradol first, if I have not taken any at home.

I am sooo sick of al of this.  Can anyone help me, please????

I cannot help but think that my migraines are in some way related to the MS.  I understand that electrical impulses are ionic chemicals.  And destruction of myelin cause disarray of the signal.  It is as if doing something else helps to divert the excess energy to lesson the tremors sometimes.  And talking helps to divert the extreme energy, too.  I know MS causes tremors with movement.  It is almost as if I have a Parkinson symptom with it in that the extra movement or cognitive usage decreases some of the problems.

I really need more answers.  All I have left is my integrity and honesty.  And I think that that is being challenged by the medical community because of my conditions.  I am feeling to invalidated.  My neuro says I have been the victim of medical negligence in my MS diagnosis being so delayed.  I should have started on the ABCs years ago before the transverse myelitis.  I am so very frustrated.  It is enough to cause anxiety.  Oh, but then, that would be the cause of my problems.  There have been no further search for an organic cause of my migraines.  I was in my thirties and planning to attend medical school when they started.  And they strike when I am asleep.  My neuro says that they have an unusual pattern.  I wish I have more answers and help.

Thank you for your times.

Torey

[needanswers54]

Iapologize for mispelling your name above and the other grammatical errors.  

This computer is acting up and keeps shutting down without me being able to save anything.  So, I was trying to hurry.

Thanks again for all your time and consideration.

Torey