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nonsystemic vasculitic neuropathy physician

nonsystemic vasculitic neuropathy physician

My husband was diagnosed with nonsystemic vasculitic neuropathy  about 3 years ago.We live in Mississippi. Our dr we were seeing in New Orleans has passed away and we are having trouble locating a dr that is familiar with this rare disease. Any recommendations would be appreciated. We saw a dr in birmingham, al., but were not real impressed with him. He has not responded to the immuneglobulin treatment, steroids, or chemo. we are still looking for an answer to his severe pain. Thanks.
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have a look at site (xcell.com) you might get some fresh ideas from there.  deano218
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