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Posted by CCF MD mdf .. on June 23, 1998 at 11:50:55:
In Reply to: Re: Re: Re: nystagmus posted by Mary on June 06, 1998 at 11:34:00:
: I just read your letters, and it struck me that you may be the only person I've found on the net with a story like mine. (see below, my post labeled "Acquired Rotary Nystagmus" Lyme has been ruled out for me, and I also have a "clear" MRI. Nystagmus is not my only symptom, however. Like you, I have various points of tingling and related sensations in my arms and legs. Short term memory is very, very bad. I write everything down. Dizziness is my constant companion, and it has been determined that this is brainstem - not inner ear.
For loads of info on nystagmus, you may want to check out the following:
This is the American Nystagmus Network. You'll find info about the condition, contacts with others who suffer from it, and links to other sources of info.
Good luck to you. I am one of those drifting through the medical community hoping someone will someday stumble onto a full diagnosis. At this point, no one knows the source of my nystagmus or other neuro problems. Time may show more - this has only been going on for less than a year, and I'm told it can take years of comparative exams to nail everything down. Till then, I just live with what I have, laugh often, and believe that God will protect me from walking into too many walls! :)
see answer to another thread on this post.
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