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nystagmus
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nystagmus


    
      Re: Re: Re: Re: nystagmus
    


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Posted by CCF MD mdf .. on June 23, 1998 at 11:50:55:

In Reply to: Re: Re: Re: nystagmus posted by Mary on June 06, 1998 at 11:34:00:

: I just read your letters, and it struck me that you may be the only person I've found on the net with a story like mine.  (see below, my post labeled "Acquired Rotary Nystagmus"  Lyme has been ruled out for me, and I also have a "clear" MRI.  Nystagmus is not my only symptom, however.  Like you, I have various points of tingling and related sensations in my arms and legs.  Short term memory is very, very bad.  I write everything down.  Dizziness is my constant companion, and it has been determined that this is brainstem - not inner ear.  
  For loads of info on nystagmus, you may want to check out the following:
  www.fas.harvard.edu/~jbeall/index.html
  This is the American Nystagmus Network.  You'll find info about the condition, contacts with others who suffer from it, and links to other sources of info.  
  Good luck to you.  I am one of those drifting through the medical community hoping someone will someday stumble onto a full diagnosis.  At this point, no one knows the source of my nystagmus or other neuro problems.  Time may show more - this has only been going on for less than a year, and I'm told it can take years of comparative exams to nail everything down.  Till then, I just live with what I have, laugh often, and believe that God will protect me from walking into too many walls! :)
=
see answer to another thread on this post.




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