pls read all, questions at the bottom

[ambrosiawind]

I am becoming frustrated with the doctors i have seen in my life. One doctor, when over a period of one year i complained of severe abdominal pain and low back pain and bloating, told me i was fine and i should be thankful i am a healthy girl. same day he said this to me after a year of complaints whet to a clinic where the doctor tested me for chlamydia and it came back positive.

2nd doctor went to him with severe headache on right side of head he gave me percocets and sent me home i suffered with pain for almost 2 weeks then the blood clots on my legs showed up, then i started throwing up because i couldnt take the pain anymore went to the hospital and i was admitted with bacterial meningitis. my GP shows up and says" i knew you had meningitis but you'd be fine"

3rd doctor I complained again for almost a year of pain in my stomach doctor gave me pariet for heartburn i would wake up almost on a daily basis feeling nauseous, foods made me sick, and i had just started a new job and was almost fired due to my attendance because i could not cope with the nausea. Finally i went to the hospital and i had an ulcer.

Now for the last 6-7 months i have had shooting pain in my legs and arms like being shocked, I have this burning sensation mostly in my thighs which i have had for 2 years but my GP just ignores it when mentioned. I have had blood tests, CT scan and bone scan which came back normal with the exception of a slight L5-S1 disk protrusion however nothing was out of normal range I was refered to a neurologist who did not want to hear any of my symptoms as she was told she was just testing my hands so if the problem was all over then i had to "pick a limb"  

I just came back from my GP and while there saw the note on my file from the neuro that it was most likely anxiety.

As you can see with my past history with mis diagnosis and undiagnosing i am a little skeptical

What i want to know is from everything that i have read anxiety ( GAD, PTSD, social, OCD, etc.) does not cause these types of pain or symptoms am i missing something here???

I am currently taking nortriptyline 10mg prescribed by an ER doc which helps about 90% I understand that this dose is for neuropathic pain

My symptoms are this

burning sensations in thighs, face sometimes in other locations,
electric shock like senstation in my legs and arms I had one that went up the center of my spine.
a feeling like charlie horses in my calfs
I feel at times like my tendons or muscles in legs are going to snap they feel tight and hurt to touch at times.
I get crazy headaches One that caused me to lose my vision for a few days after the headache broke. and had eye pain feeling like something was wrapped around my eyeball I occasionally have eye pain upon movement but its not bad enough to interfere with anything.
a year ago i woke up and walked about 15 feet and fell because i could not feel my legs.
bowel disturbances  where my movement will go from normal to explosive and loose to hard to excrete and watery ( this happens all in one day)I am going through this now and have not had a bowel movement for 5 days
mild dizziness and loss of balance has occured after i am walking and then stop i have had to catch myself from falling to one side.

Please Please tell me Can this all really be anxiety related??????

[ambrosiawind]

I am taking Nortriptyline 10mg 1 pill at bedtime( this works wonderfully for me there is the odd time that i have shocks or burning but for the most part since i started taking it I forget what its like to have pain on a daily basis). and thank you for the lysine tip I've known of that for sometime though as i can live with the cold sores (i've had them my entire life) I often forget to take it that and unfortunately the little buggers like to pop up in my sleep so i dont know im getting one until i have woken up and it's too late.lol

[katika29]

Would you mind telling me what meds you are on for neuropathic pain.  I was given Xanax for better sleep because the doctor said if I wasn't sleeping well I must be anxious!
I'm currently taking xanax before bedtime, when I first started taking it I was sleeping better, a full five hours without awakening, however, 1-2 months later it isn't working as well for the sleep, and I now wake up tired again.  I was given Neurontin 100 mg for tingling, numbing pain not really helping at this dosage.  I am like you I don't like to go to Drs. and/or take drugs and would rather go the natural way.  However, I am in a lot of pain now and need something to help as soon as possible, and the natural remedies take a long time before one can feel results.  My neurologist prescribed Cymbalta for me yesterday, 30 mg to start and then 2 weeks later if needed increase dosage to 60mg, it is prescribed for fibromyalgia, and as an anti-depressant, and also supposedly helps with anxiety, but may create insomnia - can't win.  I have read mixed reviews about it, so I'm a little concerned, that is why I was wondering what you were taking for the neuropathic pain. Also are you on Valtrex for herpes, I had shingles a few years back and they told me it was also for herpes, really helped the shingles pain I only took it for two weeks. If your type of herpes is only on the lips, I swear by Lysine, an excellent one is a cap made by Quantuum it has added herbals, and if you take the caps at the first sign of a cold sore, it will NOT come out on your lip.  Everyone I have told this about and who has tried it, can't believe Lysine works so well, it is better than any of those new ointments that are sold now.  Post back if you get a chance with what you are taking for Neuropathy.  Those of us suffering need to help each other with our knowledge because it seems as if the Doctors pooh-pooh our pains and think that it is probably in our heads.

[ambrosiawind]

Thank you for responding! No I have not been tested for MS or Lupis, My symptoms are similar to MS yes but the shooting pain can be a symptom of many symptoms. What gets me is that the med i am on and the dosage is for neuropathic pain not anxiety or stress. My mother has fibromyalgia and for almost a decade complained of pain but was told it was anxiety, which fair enough for her she does have some issues where that is concerned. However I do not! I went on Zoloft at one point in my life at my suggestion as i had just had a new baby and was a part of this very big and overwhelming family (i never had a family just me and my mom growing up) so naturally i had some great difficulty dealing with everyone having an opinion and telling me what to do ( I had already raised a child on my own as a single mother with no trouble) anyway i knew that i needed something I knew that there was something wrong I had insomnia, nervouseness, over thinking and crying all the time. I just really feel that this cannot be anxiety I have nothing in my life that makes me anxious, I have a wonderful family, great in-laws, and a great job!.  Though nothing in life is perfect it's those imperfections that make life great. I It seems to me one you are on anykind of antidepressant once then you automatically get put into a category. I have always been healthy I rarely ever went to the doctor and even avoided my yearly's if i could I like to take care of my self in a natural way.

I really do not like to take pills and if i don't have a neurological issue then why am I?

Just a quick add to help figure this out if any doctors read this can any of these things attribute to the symptoms I am experiencing?

I have herpes simplex1(cold sores)
bacterial meningitis ( I came out of this infection without any issues I am very lucky)
a (bloody tap) during a lumbar puncture
light sensitivity (photophobia) prior to meningitis

Thank you

[katika29]

I have some of the same symptoms of pins and needles, and pain in leg and arm.  Drs. haven't been very helpful either, When they don't know what's wrong they say I have Fibromyalgia, and Chronic Fatigue Syndrome.
Have you been tested for MS or Lupus, for  vision problems,  loss of balance and tingling pain in your extremities.  I was tested for all, I thought for sure I had MS because my symptoms were so similar to the ones of MS.  I tested negative for MS and Lupus, but I wonder if at some later point in my life, it will show up in the blood, but that it is not at the diagnosable level yet, according to the charts. My blood tests came back positive for low level Rheumatoid Arthitis, but the Rheumatologist didn't give me anything because he said I was low level,  Hello - my pain is not low level.  Unfortunately, the Doctors don't take you seriously even if your blood work show some kind of problem, they always say that your pain is probably from nerves and anxiety!  It is very frustrating. Let me know if you were tested for MS and Lupus or diabetes because some of the symptoms you write about could possibly fall under those categories.