porencephally

First to the girl that wrote about her 46 yr old mother, your mother not bipolar having porencephally means you wake up every morning feeling like your head in a fish bowl and their someone squeezing a pair of viscripes to your head. For give her her short comings and know she has know control the brain is doing what it wants.


I was givin my answer to my  headaches back about twelve years ago and seem to be butting my head against a wall, I cant get doctors to understand how feel everyday. And there dont seem to be anything new to help. I just saw a new neurologist yesterday and had too travel two hours to see him to have him give a new drug and then told me he would hand it back over to my family doctor to handle.  It almost like they dont know what to do for me and give up.  

My question is what kind of new research is  being done or is there any all being done help the people being told they have porencephally and other brain defects.  I know for me it is a struggle everyday just to get up and go to work let alone all the other things going on in my life. The one page descrbition of porencephally on every web site is so vag the it doesnt help anyone understand What they are going through.  

liz canada





This discussion is related to Hereditary?.