In May this year. my 14 year old son had a bad case of lyme in may which presented itself as lyme arthritus in the knee. His knee was 4 inches bigger than it should be and had to be drained 3 times. After 2 weeks of oral antibiotics they were deemed ineffective and so he had 4 weeks of IV. fastforward to now, he has had daily headaches for 3 months, is tired and losing his appetite. at 6 feet 1 inch he weighs only 124lbs, he did regain the weight lost in May but has starting losing weight since August. The rheumatologist has now prescribed amitriptyline to be taken in the evening to eliminate the headaches and referred us to a neurologist.. we have been given a follow up appointment in 2 months time. Should I be doing anything else? my son has a Learning disability making it difficult to determine whether there are any other neurological issues.
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