postpump chorea

    
      Re: postpump chorea
    


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Posted by CCF MD on November 26, 1997 at 12:01:09:

In Reply to: postpump chorea posted by CBaeta on October 26, 1997 at 17:06:52:

: My 7 year old son underwent his second open heart, with cpb and hypothermia, on July 28th of this year.  He went into the surgery a very neurologically healthy and bright little boy.  He has been diagnosed with Postpump Chorea.  We have a host of excellent doctors but no one knows how this happens or what to do now except wait.  Our family is suffering terribly.  My son now has dystonia, hypotonia, occular motor atrasia, speech problems, academic problems, personality changes, is very emotional, and ADHD.   He had a normal EEG and MRI two weeks post op.  Would we expect these to change?  What can we do?  What is his long term prognosis?  I have read everything I could find on this subject but can not figure out why this happens only in the very young, usually infants yet occured in my seven year old.  Does this happen in adults?  Why or why not?  I would love to hear from anyone with any interest or knowledge on this subject.
  Thank you-
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Thanks for the question. This can certainly be a difficult problem. You are correct in
that PPC normally affects younger children. I'm not sure that I have any specific insights but I will give you a reference that may
help.
A 10 year experience with postpump chorea. Annals of Neurology 34 (6): 820-6, 1993.
Medlock MD, Cruse RS, Winek SJ et al.
I hope this gives you some insights.

[wanty]

A related discussion, post pump chorea was started.