pseudotumor cerebri

Posted By Alicia on November 10, 1997 at 23:05:01:









  My 10 year old daughter was diagnosed with pseudotumor cerebri last spring. This was found after visits to a neurologist and pediatric opthamologist.An MRI was negative and papilledema was evidenced. A spinal tap was performed..her opening pressure was 260. The pressure was brought down to 140 and within a few hours she began to get relief from her constant headache,dizziness and visual disturbances.She has remained symptom free until now. The symptoms have once again reared their ugly heads! She is trying a course of Diamox instead of undergoing another spinal tap now. My questions to you are...Is it likely the pressure on the optic disk will cause permanent damage to her eyes? Are there other problems that could arise from this condition other than the effects it is having on her eyes? With the 1-2 week time span that it takes for the Diamox to "kick in" I wonder if the spinal tap is the better of two evils?
(Of course it's not MY back!)
Thank you for any information you can provide.