I have Psuedo Tumor Cerebri. I have done all there is to do for it, and yet it still is rather severe. I have lost weight, (back to my before baby weight) I have been on Diamox, right now I am maxed out at 3 grams daily. I also have a VP shunt that is working. (this one is my 4th in 3 yrs.) However I am still needing LPs about 2-3 times a month, and my CSF pressures are usually in the 50's and out the top of the monometer. My neurosurgeon is suggesting a lp shunt as well. Have you ever heard of someone having both shunts, or is there something else out there? I am feeling desperate at this point, I don't want to go blind, and I want to be back on my feet for my family. Please let me know if you know of any more that can be done.
How are you feeling now?
The majority of patients are young, female, and obese. Treatment with a carbonic anhydrous inhibitor such as acetazolamide lowers intracranial pressure (which you are already on) by reducing the production of CSF. Weight reduction is exceedingly important (as you told you have gone back to babies weight) but often unsuccessful.
If acetazolamide and weight loss is unsuccessful and still visual loss is progressive, Lumboperitoneal shunting or optic nerve sheath fenestration should be undertaken without delay, when required, to prevent blindness.
Hope this helps.
Copyright 1994-2016 MedHelp International. All rights reserved.
MedHelp is a division of Aptus Health.
This site complies with the HONcode standard for trustworthy health information.
The Content on this Site is presented in a summary fashion, and is intended to be used for educational and entertainment purposes only. It is not intended to be and should not be interpreted as medical advice or a diagnosis of any health or fitness problem, condition or disease; or a recommendation for a specific test, doctor, care provider, procedure, treatment plan, product, or course of action. Med Help International, Inc. is not a medical or healthcare provider and your use of this Site does not create a doctor / patient relationship. We disclaim all responsibility for the professional qualifications and licensing of, and services provided by, any physician or other health providers posting on or otherwise referred to on this Site and/or any Third Party Site. Never disregard the medical advice of your physician or health professional, or delay in seeking such advice, because of something you read on this Site. We offer this Site AS IS and without any warranties. By using this Site you agree to the following Terms and Conditions. If you think you may have a medical emergency, call your physician or 911 immediately.