sensory problems after removal of brain tumor

Hi My daughter is 3.5 years old, in February 2008 she was diagnosed with a 4cm brain tumor, the whole tumor was removed and it was a benign tumor a choroid plexus papilloma. After the surgery she was left with a permanent facial palsy on her right side and also has no feeling in her face we have had a nerve study done that shows the nerves are completely dead. she has also lost the hearing on the right side from the nerve being damaged during surgery. she keeps developing an ulcer on her right eye so that has now been closed with a permanent tassorrophy. she has learn t to walk again and her coordination is coming along well still has a lot of falls but is going well. Since the surgery she had mild sensory problems when touch but nothing too bad. over the past few months this has gotten a lot worse she is complaining the clothing from the waist down is hurting she is oftern hot to touch but no tememperature and only in that area she refuses to wear socks and screams in pain if you put them on yet everywhere else she has a huge pain tolerance. she often refuses to wear clothing from the waist down and she misses many days at preschool which she loves because some days the pain gets too much and we cannot find anything comfortable. there is no particular material that she prefers something that is comfortable one day is not the next. she has also developed at sensation under her chin around her neck and says that it is stick we wash and wash it but the sensation does not go away. she has also been complaining that she is feeling like her legs are wet and screams for us to dry them but there is not water there and they are dry. we also found out a few months ago the she has a mild hearing loss in the left ear requiring a hearing aid we have had about 6  hearing test done in the last 6 months and they have all confirmed the same result. we have spoken to our neurosurgeon about these new symptoms and he is stumped he does not think that it is related to the original tumor and its removal.  Please help i don't know what to do but I know there is something really wrong. She has MRI scans every 3 months the brain space has not healed from surgery yet and the tumor that was pushing on the brain stem has left the brain stem slightly pushed to the left other than this there is no evidence of the tumor returning or a new one. any suggestions would be appreciated. Thank you for your time