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Posted by CCf Neuro MD *!* on December 06, 1997 at 23:16:49:
In Reply to: slow progression of parkinsons posted by mary e sanford on December 05, 1997 at 18:19:20:
: I was diagnosed Dec 4, l994 @ age 63 - started on Eldepryl 2xday.
Second opinion Nov 5, l995 @ Johns Hopkins
He recommended adding Sinemet but I refused because I was doing very well & have personal trainer 3 days week for flexibility & balance in Winter & play golf in summer'
April l997 added Amantadine 2 per day & it worked w/ Eldepryl great! no side effects from either.
My problem is stiff hip joint & loss of dexterity but no tremor. What is a Movement Disorder Clinic & why are they important in the treatment of PD?
My complaint w/ neeurologists is they treat from the book and not from the patient (in my experience
A movement disorder clinic is simply a specialty neurological clinic
which is staffed by Neurologist who have additional training beyond
residency specifically in movement disorders and who spend most or
all of their time seeing patients with these diseases.
The majority of the patients in most movement disorder clinics have
Parkinsons as this is a fairly common movement disorder.
The advantage of a movement disorders clinic is that in addition to the
attention of a subspecialist it is also staffed by physical and
occupational therapists and possibly social workers, this allows
access to the full range of support services and frequently the
opportunity to participate in clinical trials of new treatments.
As regard your perception that neurologist treat from the book,
this view may possibly have some validity in the early stages of the
disease since there is a strong reccomendation (in the textbooks)
that very patient should start on Eldepryl at diagnosis because it
slows the progression of the disease.
Later there are more options which can be considered and treatment can
be more individualised.
This information is provided for general medical education purposes only.
Please consult your physician for diagnostic and treatment options of your specific medical condition.
trials are generally carried out by people working in
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