Dear Nancy:
Sorry to hear about your problem speaking. I am not sure that based on what I read, I can help sort things out for you. I don't think that you have ALS. By the time a patient has noticable symptoms, especially with bulbar symptoms, the EMG should have been positive for muscle necrosis or loss. This type of ALS is more progressive and the time of symptoms onset to death is usually shorter (1-2 yr). The normal MRI and blood work rule out many of the worrisome etiologies of bulbar symptoms. Since the EMG was also normal, there is likely not a neuropathy involved. So, I am without a clear explanation. I am sorry I'm not much help.
Sincerely,
CCF Neuro MD