Neurology Community
spinal myoclonus, palatal myoclonus- anyone out there?
About This Community:

This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

spinal myoclonus, palatal myoclonus- anyone out there?

I have spinal myoclonus. It has been spreading down my spine and up my spine. I get horrible spasms in my back, neck, spine and my right arm spasms - visible to others. This condition is both very emotionally exhausting and very physical exhausting.  It has been a very difficult journey and I would really like to find others dealing with this same condition. On top of this I have palatal myoclonus where my ears constantly pop as a result of my mouth palate spasming. Anyone out there with spinal myoclonus and or palatal myoclonus please get in contact with me. Thanks
Related Discussions
2 Comments Post a Comment
Blank
Avatar_dr_f_tn
Hi there. Spinal myoclonus is myoclonus in the spinal cord including segmental and propriospinal myoclonus. Palatal myoclonus is a regular rhythmic contraction of one or both sides of the soft palate. These can be accompanied by myoclonus in other muscles like face, tongue, throat and diaphragm. These are very rapid about 140 a minute and may persist even in sleep. Treatment includes stopping any drugs suspected to be causing myoclonus and treating metabolic derangements. Drugs include anticonvulsants though at times paradoxical reactions are noted.  Multiple drugs may be required like clonazepam, valproate, piracetam, hormonal therapy. Take care.
Blank
Avatar_f_tn
Dr Sharma Thanks for your message. Please expand on "metabolic derangements". What can be done about spinal myoclonus. I have been going to accupunture for it for 2 + years and have been taking Toporol and Valium. Previously I took clonazepam and Nuerton for many years. Nothing seems to help and it is spreading. I notice that when the arm/back/neck spasms are really bad the ear/palatal spasms are ok/do-able and vica versa. I have been living with this nightmare for the last 7 years and I am BEYOND done with it! We are thinking of going to Mayo Clinic. Suggestions? Thanks
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
RSS Expert Activity
469720_tn?1388149949
Blank
Abdominal Aortic Aneurysm-treatable... Blank
Oct 04 by Lee Kirksey, MDBlank
242532_tn?1269553979
Blank
The 3 Essentials to Ending Emotiona...
Sep 18 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Control Emotional Eating with this ...
Sep 04 by Roger Gould, M.D.Blank
Top Neurology Answerers
620923_tn?1416285879
Blank
selmaS
Allentown, PA
338416_tn?1413581329
Blank
jensequitur
Fort Worth, TX
10389859_tn?1409925468
Blank
Foggy2
Avatar_m_tn
Blank
Ball123
1780921_tn?1416842066
Blank
flipper336
Chandler, AZ
293157_tn?1285877039
Blank
Wobbly