still no answer

[tania again, add to question]

Good morning.On 5/29/00, I posted a question listing my symptoms. The neuro who responded suggested two (one was sensory nerve root)things and thought that my nerve conduction test would help determine what was wrong.  Well, I had that test and the "needle" test and both came back normal.  Due to the type of problems I was experiencing (migrating numbness, migrating burning, and migrating tingling), we had a c-spine test run.  It too came back normal.  I think the only thing we haven't done is blood test and t-spine.  I am wondering if we will find the cause of what is wrong.  Along with the other symtpoms, I notice my sacroiliac joing pops all the time and sometimes is painful.  On occasion, my knee or my big toe feel like they need to pop. I have also had a weird episode with my eyelids when they twitched rapidly at times, but this too, like everything else disappeared. Also, I must mention the weird tingling sensation I get on the top of my head.  My neuro suggested FMS or that this was something "I just needed to get my mind off of and it would disappear." However, I am a 30 year old female with a 3 year old child and a husband.  We lead very busy lives, and I don't have time to just sit around and dream up weird things!  There is something definitely going on. Please help suggest what you think could be causing these problems.  I am scared the episode of excrutiating neck pain will return, and I will be home with my child alone and have a difficult time manuevering my head. I read about lyme and it sounded like the symptoms,butI live in an area where lyme is very rare. I am at a loss?  Can you please help?

[CCF Neuro[P] MD, RPS]

Dear Louise:

In the face of completely normal testing, I am not sure I can offer an explanation.  There are times that we just do not understand why symptoms are happening.  Sometimes it is when a problem is in the beginning stages and the complete picture of a disease hasn't occured.  Sometimes a problems has a large "mind" and "stress" component (meaning that the stressors of life begin to play on the nervous system and increase symptoms, both in our appreciation of them and the actual symptom itself).  I realize that you symptoms are real and disturbing.  I can't examine you nor do I have the lab and images to review.  Often, a second opinion helps as a new pair of eyes and mind might be able to come up with something.

The normal testing is reassuring as most of the very worrisome problems are usually picked up.  

I am sorry that I am not helping you much.

CCF Neuro MD

[Fibromyalgia]

Dear Louise,
Maybe you could have a Small Fiber Punch Biopsy done to see if you have a small fiber sensory neuropathy at play.
Also you may want to view www.geocities.com/quinolones/ as many describe like symptoms.

[Mitzi Webb]

Dear Louise,
As one who HAD fibromyalgia, I strongly recommend that you run--don't walk--to the nearest book store (i.e., Barnes & Noble)and get MAGNET THERAPY, Ron Lawrence, M.D., PH.D and Paul J. Rosch, M.D., F.A.C.P.  I no longer have any of the discomfort associaated with this problem.  I no longer need 4 Advil every six hours to function.  If you would like to discuss, my e-mail:
***@****.  Mitzi

[Mary]

I am very happy to hear that your "Fibro" is better, but I suggest that perhaps you had something else rather than Fibromyalgia, since it is not curable.  I have Fibromyalgia and have spent many, many hours researching the subject and the one thing I have found out is that there is no cure.  An individual can get relief and even periods of less pain, but "no cure."  Myofascial Syndrome genenerally goes with Fibro and,also, Chronic Fatigue Syndrome.  I have had Myofasical release massages which helped to lessen the "knots" and "bumps" in the fascia.  I also have had two acupuncture treatments. I hope to have more so that I can determine how much these are helping me, but, of course, I have to wait on approval from the insurance company.

Tell me more about your magnet treatment.  Would be interested in hearing about it.