Neurology Community
trigeminal neuralgia and neurofibromatosis
About This Community:

This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

trigeminal neuralgia and neurofibromatosis

I was just diagnosed with trigeminal neuralgia after several painful days of unbearable facial pain. Although I had all the standard symptoms of trigeminal neuralgia my pain seemed to last much longer than the less than 2 minute epidoes as described in medical text. The night I went to the ER it had been going on for over an hour. I also have NF1 but have never had a MRI or CAT scan. After going to the ER I was referred to neurologist. I called today and they (neurologist) can't get me in for several weeks. I'm concerned that I may have a tumor - other symptoms I've had which I previously didn't think were significant are ringing in ears, vertigo, headaches, and feeling like I my ears were popping.
Related Discussions
Avatar_f_tn
I would go to the ER and get a MRI. I have a now 11 year old with NF1. Two years ago she complained of double vision we took her to the ped doctor. He sent us to a eye doctor. We went my daughter had eye surgrey. Than 3 months later I was watching my daughter and her eyes did not seem right I called the eye doctor she told me to bring her in. We went in and she told us we have to do a MRI today we did. We were in the ER the same day next morning she went in for brain surgrey. I was told if I didn't see what I saw which was really nothing. I felt more something was off. I saved her life.
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
RSS Expert Activity
242532_tn?1269553979
Blank
How to Silence Your Inner Critic an...
Apr 16 by Roger Gould, M.D.Blank
242532_tn?1269553979
Blank
Emotional Eaters: How to Silence Yo...
Mar 26 by Roger Gould, M.D.Blank
1344197_tn?1392822771
Blank
Vaginal vs. Laparoscopic Hysterecto...
Feb 19 by J. Kyle Mathews, MD, DVMBlank
Top Neurology Answerers
620923_tn?1393294254
Blank
selmaS
Allentown, PA
352007_tn?1372861481
Blank
LisaJF
1780921_tn?1384615710
Blank
flipper336
Chandler, AZ
Avatar_f_tn
Blank
Joiedecour
Indianapolis, IN
900662_tn?1380159390
Blank
johnniebear
chicago area, IL
1667208_tn?1333111449
Blank
zygy2
NH