Neurology Community
trigeminal neuralgia and neurofibromatosis
About This Community:

This forum is for questions and support regarding neurology issues such as: Alzheimer's Disease, ALS, Autism, Brain Cancer, Cerebral Palsy, Chronic Pain, Epilepsy, Headaches, MS, Neuralgia, Neuropathy, Parkinson's Disease, RSD, Sleep Disorders, Stroke, Traumatic Brain Injury.

Font Size:
A
A
A
Background:
Blank
Blank
Blank
Blank Blank

trigeminal neuralgia and neurofibromatosis

I was just diagnosed with trigeminal neuralgia after several painful days of unbearable facial pain. Although I had all the standard symptoms of trigeminal neuralgia my pain seemed to last much longer than the less than 2 minute epidoes as described in medical text. The night I went to the ER it had been going on for over an hour. I also have NF1 but have never had a MRI or CAT scan. After going to the ER I was referred to neurologist. I called today and they (neurologist) can't get me in for several weeks. I'm concerned that I may have a tumor - other symptoms I've had which I previously didn't think were significant are ringing in ears, vertigo, headaches, and feeling like I my ears were popping.
Related Discussions
Avatar f tn
I would go to the ER and get a MRI. I have a now 11 year old with NF1. Two years ago she complained of double vision we took her to the ped doctor. He sent us to a eye doctor. We went my daughter had eye surgrey. Than 3 months later I was watching my daughter and her eyes did not seem right I called the eye doctor she told me to bring her in. We went in and she told us we have to do a MRI today we did. We were in the ER the same day next morning she went in for brain surgrey. I was told if I didn't see what I saw which was really nothing. I felt more something was off. I saved her life.
Blank
Post a Comment
To
Blank
Weight Tracker
Weight Tracker
Start Tracking Now
Neurology Community Resources
Top Neurology Answerers
620923 tn?1452919248
Blank
selmaS
Allentown, PA
144586 tn?1284669764
Blank
caregiver222
1780921 tn?1416842066
Blank
flipper336
Chandler, AZ
11079760 tn?1449081557
Blank
cjtmn
Minneapolis, MN
209987 tn?1451939065
Blank
tschock
AB
4760166 tn?1398360913
Blank
The_beat_goes_on
TX